Surgical Department, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden.
Institute of Health and Care sciences, the Sahlgrenska Academy Gothenburg University, Gothenburg, Sweden.
J Clin Nurs. 2021 Aug;30(15-16):2309-2319. doi: 10.1111/jocn.15769. Epub 2021 Apr 7.
To describe patients' experiences of coping with daily life practically and emotionally during the first years after stoma surgery.
For people with a stoma, a new life awaits with altered bowel function and body image. This means a profound change in a person's life.
A qualitative descriptive design using focus group interviews to gain an understanding of patients' experiences of coping with daily life. This study followed the COREQ checklist for reporting qualitative research.
Six focus groups including 21 patients with a stoma experience of 1-3 years. Mean age was 65 (23-79) and comprised 9 men and 12 women. Thirteen participants had a colostomy, 8 had an ileostomy. The interviews were analysed with a qualitative content analysis.
Patients lived with uncertainty due to lost control over bowel function and did not feel comfortable with the new body. They had adjusted to the new life with a positive impact, by changing their attitude, enabling a social- and working life and tried to take control over the situation. Patients with a temporary stoma put life on hold.
Patients with a stoma lived with uncertainty, not trusting their body like before. They strived to regain control of their lives according to their own resources and conditions and with support from healthcare professionals. Interacting with others in similar situations and exchanging experiences, in demanding areas such as body image, sexuality and social activities could support patients in coping with their new life with a stoma.
The findings can help stoma care nurses and healthcare professionals plan themed lectures and group discussions for patients regarding coping with areas that are especially demanding. A themed evening would give patients the chance to share and exchange experiences and receive affirmation from others in the same situation.
描述患者在造口手术后的头几年中在日常生活中实际和情感上的应对经验。
对于有造口的人来说，随着肠道功能和身体形象的改变，新的生活即将开始。这意味着一个人的生活发生了深刻的变化。
使用焦点小组访谈的定性描述设计，以了解患者应对日常生活的经验。本研究遵循 COREQ 清单报告定性研究。
六个焦点小组，包括 21 名有造口经验 1-3 年的患者。平均年龄为 65 岁（23-79 岁），包括 9 名男性和 12 名女性。13 名参与者有结肠造口术，8 名有回肠造口术。访谈采用定性内容分析进行分析。
患者由于失去对肠道功能的控制而感到不确定，对新的身体感到不舒服。他们通过改变态度、实现社交和工作生活，并试图控制局面，积极地适应了新的生活。有临时造口的患者暂停了生活。
有造口的患者生活在不确定之中，不再像以前那样信任自己的身体。他们根据自己的资源和条件努力重新控制自己的生活，并得到医疗保健专业人员的支持。与处于类似情况的其他人互动，并在身体形象、性和社交活动等要求苛刻的领域交流经验，可以帮助患者应对新的造口生活。
这些发现可以帮助造口护理护士和医疗保健专业人员为患者计划应对特别具有挑战性的领域的主题演讲和小组讨论。主题晚会将为患者提供分享和交流经验的机会，并从同一情况下的其他人那里获得肯定。
