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中国“慢阻肺全程管理”项目对社区肺部健康服务的设计。

Community lung health service design for COPD patients in China by the Breathe Well group.

机构信息

Department of General Practice, Peking University First Hospital, 100034, Beijing, China.

Department of Emergency, Beijing Friendship Hospital, Capital Medical University, 100050, Beijing, China.

出版信息

NPJ Prim Care Respir Med. 2022 Aug 19;32(1):27. doi: 10.1038/s41533-022-00286-8.

Abstract

COPD is increasingly common in China but is poorly understood by patients, medications are not used as prescribed and there is no access to recommended non-pharmacological treatment. We explored COPD patients' and general practitioners' (GPs) knowledge of COPD, views on its management and the acceptability of a flexible lung health service (LHS) offering health education, exercise, self-management, smoking cessation and mental health support. Using a convergent mixed methods design, data were collected from patients and GPs using focus groups (FGs) in four Chinese cities, questionnaires were also used to collect data from patients. FGs were audio-recorded and transcribed. Quantitative data were analysed descriptively, thematic framework analysis was used for the qualitative data. Two-hundred fifty-one patients completed the questionnaire; 39 patients and 30 GPs participated in ten separate FGs. Three overarching themes were identified: patients' lack of knowledge/understanding of COPD, current management of COPD not meeting patients' needs and LHS design, which was well received by patients and GPs. Participants wanted COPD education, TaiChi, psychological support and WeChat for social support. 39% of survey responders did not know what to do when their breathing worsened and 24% did not know how to use their inhalers. 36% of survey respondents requested guided relaxation. Overall, participants did not fully understand the implications of COPD and current treatment was sub-optimal. There was support for developing a culturally appropriate intervention meeting Chinese patients' needs, health beliefs, and local healthcare delivery. Further research should explore the feasibility of such a service.

摘要

慢性阻塞性肺疾病(COPD)在中国越来越常见,但患者对此了解甚少,药物未按规定使用,也无法获得推荐的非药物治疗。我们探讨了 COPD 患者和全科医生(GP)对 COPD 的认识、对其管理的看法以及接受灵活的肺部健康服务(LHS)的意愿,该服务提供健康教育、锻炼、自我管理、戒烟和心理健康支持。采用汇聚式混合方法设计,在中国四个城市的焦点小组(FG)中从患者和 GP 收集数据,还使用问卷从患者收集数据。FG 进行了录音和转录。对定量数据进行了描述性分析,对定性数据使用了主题框架分析。共有 251 名患者完成了问卷;39 名患者和 30 名 GP 参加了十次单独的 FG。确定了三个总体主题:患者对 COPD 的了解/认识不足、当前 COPD 的管理未满足患者的需求和 LHS 设计,患者和 GP 都对 LHS 设计表示欢迎。参与者希望接受 COPD 教育、太极、心理支持和微信社交支持。39%的调查应答者在呼吸恶化时不知道该怎么办,24%的人不知道如何使用吸入器。36%的调查应答者要求放松指导。总体而言,参与者对 COPD 的影响和当前的治疗方案并不完全了解,认为目前的治疗方案并不理想。参与者支持开发满足中国患者需求、健康信念和当地医疗保健服务的文化适宜性干预措施。应进一步研究这种服务的可行性。

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