Yale School of Medicine, New Haven, USA.
Stanford University School of Medicine, Stanford, USA.
BMC Complement Med Ther. 2021 Feb 10;21(1):58. doi: 10.1186/s12906-021-03226-0.
To survey persons with migraine who use social media about Complementary and Integrative Medicine (CIM) for the treatment of migraine.
CIM encompasses medical treatments that are not part of but are used in concert with mainstream medicine. Between 28 and 82% of people with migraine use non-drug approaches, and approximately 50% of people with migraine do not discuss non-drug treatments with their healthcare providers (HCPs). It is important for providers to be conversant with CIM treatments and the available evidence-based data. To further this effort, people with migraine were surveyed directly through social media to identify CIM practices in which they engage.
In collaboration with the American Migraine foundation (AMF) and Yakkety Yak, a digital marketing agency, we conducted a cross-sectional survey study. Participants were recruited from the Move Against Migraine (MAM) Facebook group which has 20,000+ members. The goals of the survey were to assess the attitudes toward CIM among this group, to identify which CIM modalities are being used and to determine what patients considered to be the most effective CIM modalities. While Yakkety Yak posted the survey link on the group page, the survey itself was hosted on Qualtrics, a confidential survey service.
372 MAM members (approximately 2%) responded to the questionnaire, of which 335 reported using CIM; between 114 and 139 (34-42%) found CIM modalities to be at least mildly effective. Of note, 164 (49%) reported using cannabis derivatives or cannabinoids, specifically with, 64/164 (39%) reporting that cannabis was not effective for them.
This study provides an initial investigation into the demographic and practice patterns of migraine patients who use CIM. While this sampling may not reflect CIM use across all individuals with migraine, it does strongly suggest the need for better education on the role of, and evidence for, CIM among headache care providers, and the need to ask patients specifically about their use of and interest in CIM.
目的：调查使用社交媒体治疗偏头痛的偏头痛患者对补充和整合医学（CIM）的看法。
背景：CIM 涵盖了不属于主流医学但与之协同使用的医疗方法。28%至 82%的偏头痛患者使用非药物方法，大约 50%的偏头痛患者没有与医疗保健提供者（HCP）讨论非药物治疗方法。提供者熟悉 CIM 治疗方法和现有的循证数据非常重要。为了进一步推进这一工作，直接通过社交媒体对偏头痛患者进行调查，以确定他们所采用的 CIM 实践。
方法：我们与美国偏头痛基金会（AMF）和数字营销机构 Yakkety Yak 合作，开展了一项横断面调查研究。参与者是从拥有 20,000+成员的“对抗偏头痛”（MAM）Facebook 群组中招募的。该调查的目的是评估该群体对 CIM 的态度，确定正在使用哪些 CIM 方式，并确定患者认为最有效的 CIM 方式。虽然 Yakkety Yak 在群组页面上发布了调查链接，但调查本身是在 Qualtrics 上进行的，这是一个机密的调查服务。
结果：372 名 MAM 成员（约 2%）回答了问卷，其中 335 名报告使用了 CIM；在 114 至 139 名（34-42%）患者中，CIM 方式至少被认为有轻度效果。值得注意的是，164 名（49%）报告使用大麻衍生物或大麻素，特别是 64/164 名（39%）报告大麻对他们无效。
结论：这项研究初步调查了使用 CIM 的偏头痛患者的人口统计学和实践模式。虽然这种抽样可能无法反映所有偏头痛患者对 CIM 的使用情况，但它确实强烈表明需要更好地教育头痛护理提供者了解 CIM 的作用和证据，并需要特别询问患者对 CIM 的使用和兴趣。
