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了解父母哮喘决策背后的影响因素:对患有哮喘儿童的父母哮喘网络的定性探索。

Understanding the Influences Behind Parents' Asthma Decision-Making: A Qualitative Exploration of the Asthma Network of Parents with Children with Asthma.

作者信息

Srour-Alphonse Pamela, Cvetkovski Biljana, Azzi Elizabeth, Rand Cynthia, Cheong Lynn H M, Kritikos Vicky, Bosnic-Anticevich Sinthia

机构信息

Sydney Medical School, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.

Woolcock Institute of Medical Research, The University of Sydney, Sydney, Australia.

出版信息

Pulm Ther. 2021 Jun;7(1):151-170. doi: 10.1007/s41030-021-00145-w. Epub 2021 Feb 10.

Abstract

INTRODUCTION

Interventions aimed at optimizing parents' ability to manage their children's asthma could be strengthened by better understanding the networks that influence these parents' choices when managing asthma. This study aimed to explore the asthma networks of parents of children with asthma-specifically to gain insights into whom parents select to be within their networks and why; how individuals within parents' networks influence the way in which they manage their children's asthma medications, and factors driving the development of these networks.

METHODS

A qualitative research methodology utilizing semi-structured interviews with parents of children with asthma was employed to fulfil the objectives of this study.

RESULTS

Twenty-six face-to-face interviews with parents of children with asthma were conducted, recorded, and transcribed. Transcriptions were independently coded for concepts and themes by the research team. Asthma medications was a dominant theme identified, and revealed that parents actively sought advice and support from a series of complex and multidimensional relationships with people and resources in their health network. These not only included health care professionals (HCPs) but also personal connections, lay individuals, and resources. The composition and development of these asthma networks occurred over time and were determined by several key factors: satisfaction with their HCP provider; need for information; convenience; trust and support; self-confidence in management; and parents' perceptions of their children's asthma severity.

CONCLUSIONS

By exploring parents' asthma network, this study uncovers the complex relationship between HCPs, family and friends of parents of children with asthma, and provides new insight into the intimate and parallel influence they have on parent's decision-making.

摘要

引言

通过更好地理解影响这些父母管理哮喘时选择的网络,可以加强旨在优化父母管理其子女哮喘能力的干预措施。本研究旨在探索哮喘患儿父母的哮喘网络——具体而言,是为了深入了解父母选择谁纳入其网络以及原因;父母网络中的个体如何影响他们管理子女哮喘药物的方式,以及驱动这些网络发展的因素。

方法

采用定性研究方法,对哮喘患儿的父母进行半结构化访谈,以实现本研究的目标。

结果

对哮喘患儿的父母进行了26次面对面访谈,进行了录音和转录。研究团队对转录内容进行了独立的概念和主题编码。哮喘药物是确定的一个主要主题,表明父母积极从与健康网络中的人和资源的一系列复杂且多维度的关系中寻求建议和支持。这些关系不仅包括医疗保健专业人员(HCPs),还包括个人联系、非专业人士和资源。这些哮喘网络的构成和发展随时间推移而发生,并且由几个关键因素决定:对其HCP提供者的满意度;对信息的需求;便利性;信任和支持;管理方面的自信心;以及父母对其子女哮喘严重程度的认知。

结论

通过探索父母的哮喘网络,本研究揭示了医疗保健专业人员、哮喘患儿父母的家人和朋友之间的复杂关系,并为他们对父母决策产生的密切且并行的影响提供了新的见解。

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