National Institute for Health Research (NIHR) Biomedical Research Centre (Nutrition, Diet and Lifestyle theme) at the University Hospitals Bristol NHS Foundation Trust and the University of Bristol, Bristol, BS2 8AE, UK.
Centre for Exercise, Nutrition & Health Sciences, School for Policy Studies, University of Bristol, 8 Priory Road, Bristol, BS8 1TZ, UK.
NPJ Prim Care Respir Med. 2017 Sep 11;27(1):53. doi: 10.1038/s41533-017-0053-7.
The management of childhood asthma is often sub-optimal. Parents and other caregivers are primarily responsible for disease management and this responsibility includes communication with health professionals. The aim of this multi-perspective qualitative study was to explore the views of children, parents and health professionals to gain insight into the approach to clinical care in the management of childhood asthma. Interviews were held with nine parent-child (6-8 years) dyads, and 13 health professionals working in primary and secondary care. Interviews were transcribed verbatim and analysed thematically. Three key themes emerged that were common to all data sets; (1) Child and parent awareness of symptoms; (2) Management and child wellbeing; and (3) Professional communication education and consultation with families. Although some children demonstrate good awareness of symptoms and appropriate use of medication, some parents expressed difficulty in identifying triggers and symptoms of asthma. Furthermore, parents lacked awareness regarding appropriate use of medication for preventing and managing symptoms of asthma. Health professionals believed that communication and education was lacking. Data from all participants suggested that consultations could be enhanced with greater emphasis on children's and parents' perceptions of asthma in the development of asthma management plans.
GUIDING FAMILIES THROUGH DISEASE MANAGEMENT: Both parents' and children's perceptions and understanding of childhood asthma should be considered when developing asthma management plans. The management of asthma is challenging and can result in poor disease outcomes if care is not taken. An individual's perception of their (or their child's) asthma can also affect the efficacy of treatment. Aidan Searle at the Bristol Biomedical Research Centre, UK, and co-workers, interviewed nine parent-child groups and thirteen health professionals to determine their perceptions of childhood asthma management in primary care. While some children had a strong awareness of symptoms and appropriate medication use, some parents found it difficult to identify asthma triggers and symptoms. Parents also displayed a lack of understanding of management through medication. Health professionals focused on the need for clearer information for families when guiding management of childhood asthma.
儿童哮喘的管理往往不尽如人意。父母和其他照顾者主要负责疾病管理,这包括与卫生专业人员的沟通。本多视角定性研究的目的是探讨儿童、父母和卫生专业人员的观点,以深入了解儿童哮喘管理中临床护理的方法。对 9 对父母-子女(6-8 岁)和 13 名在初级和二级保健机构工作的卫生专业人员进行了访谈。访谈逐字记录并进行了主题分析。三个关键主题出现在所有数据集上;(1)儿童和家长对症状的认识;(2)管理和儿童健康;以及(3)专业沟通教育和与家庭的咨询。尽管一些儿童对症状和适当使用药物表现出良好的认识,但一些父母表示难以识别哮喘的诱因和症状。此外,父母对预防和管理哮喘症状适当使用药物缺乏认识。卫生专业人员认为沟通和教育不足。所有参与者的数据表明,通过更加重视儿童和父母对哮喘的看法,可以在制定哮喘管理计划时加强咨询。
指导家庭进行疾病管理:在制定哮喘管理计划时,应考虑父母和儿童对儿童哮喘的看法和理解。如果不加以注意,哮喘的管理具有挑战性,可能导致不良的疾病结果。个人对自己(或孩子)哮喘的看法也会影响治疗的效果。英国布里斯托尔生物医学研究中心的 Aidan Searle 及其同事对 9 组父母-子女和 13 名卫生专业人员进行了访谈,以确定他们对初级保健中儿童哮喘管理的看法。虽然一些儿童对症状和适当的药物使用有强烈的认识,但一些父母发现难以识别哮喘诱因和症状。父母也缺乏通过药物进行管理的认识。卫生专业人员强调在指导儿童哮喘管理时,需要为家庭提供更明确的信息。