The Warsaw Hospice for Children Foundation, Tadeusz Dąbrowski Research and Training Cente.
National Cancer Registry, Maria Sklodowska-Curie National Research Institute of Oncology.
Przegl Epidemiol. 2020;74(3):503-520. doi: 10.32394/PE.74.44.
Pediatric palliative care applies to the conditions specified in the Regulation of the Minister of Health. The previous studies have proved that the conditions' catalogue is incomplete and inadequate.
The aim of the study was to verify completeness and adequacy of the Minister of Health's catalogue and to develop a new catalogue based on available epidemiological data concerning the Polish population.
The data of the Statistics Poland on underlying causes of death of children (0-17 years old) and young adults (18-29 years old) who died in 1999-2018 were analyzed. Besides, the study includes data collected by the Warsaw Hospice for Children Foundation on diagnoses of 739 patients treated in 1994-2019, including 519 deceased. The catalogue developed on that basis was compared with the Minister of Health's catalogue.
The new catalogue of conditions that may require pediatric palliative care in Poland and the additional criteria of patient recruitment were developed. The incompleteness and inadequacy of the Minister of Health's catalogue were demonstrated.
The Regulation of the Minister of Health necessitates an amendment regarding the list of medical conditions entitling children to guaranteed palliative care and hospice services. The Minister of Health should introduce standards and medical procedures for pediatric palliative care. Patients should be recruited on the basis of recognized standards by physicians and not officials of the National Health Fund using incomplete and inadequate Minister of Health's catalogue of medical conditions.
儿科姑息治疗适用于《卫生部长条例》中规定的情况。先前的研究已经证明，该目录不完整且不充分。
本研究旨在验证卫生部长目录的完整性和充分性，并根据有关波兰人口的现有流行病学数据制定新目录。
分析了波兰统计局关于 1999 年至 2018 年期间死亡的儿童（0-17 岁）和青年（18-29 岁）的根本死因数据。此外，该研究还包括了华沙儿童临终关怀基金会在 1994 年至 2019 年期间对 739 名患者的诊断数据，其中包括 519 名死亡患者。在此基础上制定的目录与卫生部长的目录进行了比较。
制定了波兰可能需要儿科姑息治疗的条件新目录和患者招募的附加标准，并证明了卫生部长目录的不完整和不充分。
《卫生部长条例》需要对有资格获得保障姑息治疗和临终关怀服务的儿童医疗条件清单进行修订。卫生部长应制定儿科姑息治疗的标准和医疗程序。应根据医生认可的标准而不是国家卫生基金的官员，通过不完整且不充分的卫生部长医疗条件目录来招募患者。
