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“我不是一个足够好的照顾者,这是我的错”:痴呆症照顾者中越南女性照顾者的复杂自我概念。

"I am not a good enough caregiver, and it is my fault": The complex self-concept of Vietnamese female caregivers in dementia care.

机构信息

5783Tulane University, New Orleans, LA, USA; Vietnam National University, Hanoi, Vietnam.

出版信息

Dementia (London). 2021 Oct;20(7):2340-2361. doi: 10.1177/1471301221994359. Epub 2021 Feb 17.

Abstract

In Vietnam, the majority of dementia caregivers are women. They play multiple social roles, confronting role conflicts, and caregiving burdens with insufficient social supports. Dementia caregiving alters their self-concepts, or who and how good they think they are. This secondary analysis study aims to explore self-concepts of Vietnamese female caregivers of people with dementia. In total, data of 21 face-to-face, semi-structured interviews, including six follow-up interviews, conducted with 13 Vietnamese female caregivers of people with dementia, were drawn from a larger study for analysis following the thematic coding procedure. Results showed that the self-concepts of female caregivers in dementia care were complex, contextualized, and manifested in different aspects. First, the guided self and the performed self emerged from the data as the key themes consistently shared by female caregivers. Their guided self was the self that their social norms and cultural traditions told them about who they should be, while their performed self was the self they demonstrated to the outside world. The mismatch between these two types of self (self-discrepancy) caused distress among caregivers. Second, caregivers' self-concept was the combination of the three key types of the self: the moral self (a filial daughter or a responsible wife); the feminine self (a patient and graceful women); and the worthy self (a devoted and helpful caregiver). Understanding Vietnamese female caregivers' self-concepts, self-discrepancy, and its impacts on their well-being can be used to inform the development of interventions and social services for this underserved group.

摘要

在越南,大多数痴呆症照顾者是女性。她们扮演着多种社会角色,面临着角色冲突和来自社会支持不足的照顾负担。痴呆症的照顾会改变她们的自我概念,即她们认为自己是谁以及自己有多好。本二次分析研究旨在探索越南女性痴呆症照顾者的自我概念。总共从一项更大的研究中抽取了 21 名与 13 名患有痴呆症的越南女性照顾者进行的面对面半结构化访谈的数据(包括 6 次随访访谈),并按照主题编码程序进行分析。结果表明,女性照顾者在痴呆症护理中的自我概念是复杂的、情境化的,并表现在不同的方面。首先,指导自我和表现自我是从数据中一致出现的两个关键主题,是女性照顾者普遍认同的自我。指导自我是社会规范和文化传统告诉她们应该成为的自我,而表现自我是她们向外界展示的自我。这两种自我(自我差异)之间的不匹配给照顾者带来了困扰。其次,照顾者的自我概念是三种关键自我类型的结合:道德自我(一个孝顺的女儿或尽责的妻子);女性自我(一个有耐心和优雅的女人);和有价值的自我(一个忠诚和乐于助人的照顾者)。了解越南女性照顾者的自我概念、自我差异及其对她们幸福感的影响,可以为这个服务不足的群体的干预措施和社会服务的发展提供信息。

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