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陷入关怀之中:塑造慢性疲劳的道德主体。

Caught up in Care: Crafting Moral Subjects of Chronic Fatigue.

机构信息

Department of Community Medicine, General Practice Research Unit, UiT The Arctic University of Norway, Tromsø, Norway.

Department of Public Health, The Research Unit for General Practice, University of Copenhagen, Copenhagen, Denmark.

出版信息

Med Anthropol. 2021 Jul;40(5):432-445. doi: 10.1080/01459740.2021.1883011. Epub 2021 Feb 17.

DOI:10.1080/01459740.2021.1883011
PMID:33596127
Abstract

Patients with chronic fatigue receive advice to improve symptom management and well-being. This advice is based on ideas of self-management and is conveyed during clinical assessment as "activity regulation." Based on ethnographic fieldwork in a hospital clinic in Norway, we show how these patients attempt to demonstrate their competences and everyday concerns, and how the ideology of self-management frames the hope for recovery and crafts a subject with the ability to improve. Patients, however, linger between everyday social predicaments and ideals of healthy living, and are caught up in cultural models of care that deflect everyday concerns and agency.

摘要

慢性疲劳患者会收到改善症状管理和幸福感的建议。这些建议基于自我管理的理念,并在临床评估中传达为“活动调节”。基于在挪威一家医院诊所的民族志实地研究,我们展示了这些患者如何试图展示他们的能力和日常关注,以及自我管理理念如何为康复带来希望,并塑造一个有能力改善的主体。然而,患者在日常社会困境和健康生活的理想之间徘徊,被关怀和代理的文化模式所牵制。

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