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本文引用的文献

1
The need for improved collection and coding of ethnicity in health research.健康研究中改进种族数据收集与编码的必要性。
J Public Health (Oxf). 2021 Jun 7;43(2):e270-e272. doi: 10.1093/pubmed/fdaa198.
2
Beyond translation: Engaging with culturally and linguistically diverse consumers.超越翻译：与文化和语言多样化的消费者互动。
Health Expect. 2020 Feb;23(1):159-168. doi: 10.1111/hex.12984. Epub 2019 Oct 18.
3
Facilitating non-tokenistic user involvement in research.促进用户非形式化地参与研究。
Res Involv Engagem. 2019 Jun 4;5:18. doi: 10.1186/s40900-019-0153-3. eCollection 2019.
4
Clarifying the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research: A collaborative rapid realist review process.阐明使鲜少被听见的群体能够互惠参与健康和社会关怀研究的机制和资源：合作式快速务实主义审查过程。
Health Expect. 2019 Jun;22(3):298-306. doi: 10.1111/hex.12865. Epub 2019 Feb 6.
5
Involving seldom-heard groups in a PPI process to inform the design of a proposed trial on the use of probiotics to prevent preterm birth: a case study.让很少被听到声音的群体参与患者和公众参与（PPI）过程，以为一项关于使用益生菌预防早产的拟议试验的设计提供信息：一项案例研究。
Res Involv Engagem. 2017 May 25;3:11. doi: 10.1186/s40900-017-0061-3. eCollection 2017.
6
From tokenism to meaningful engagement: best practices in patient involvement in an EU project.从表面文章到有意义的参与：患者参与欧盟项目的最佳实践
Res Involv Engagem. 2015 Jun 25;1:5. doi: 10.1186/s40900-015-0004-9. eCollection 2015.
7
Black and minority ethnic group involvement in health and social care research: A systematic review.少数民族群体参与健康和社会保健研究：系统评价。
Health Expect. 2018 Feb;21(1):3-22. doi: 10.1111/hex.12597. Epub 2017 Aug 15.
8
Tokenism in patient engagement.患者参与中的表面应付行为
Fam Pract. 2017 Jun 1;34(3):290-295. doi: 10.1093/fampra/cmw097.
9
Patient engagement in research: a systematic review.患者参与研究：一项系统评价。
BMC Health Serv Res. 2014 Feb 26;14:89. doi: 10.1186/1472-6963-14-89.
10
Critical appraisal guidelines for assessing the quality and impact of user involvement in research.评估用户参与研究的质量和影响的批判性评价指南。
Health Expect. 2010 Dec;13(4):359-68. doi: 10.1111/j.1369-7625.2010.00607.x.

Patient and public involvement for ethnic minority research: an urgent need for improvement.

作者信息

Ekezie W, Routen A, Denegri S, Khunti K

机构信息

Diabetes Research Centre, 4488University of Leicester, UK.

Academy of Medical Sciences, London, UK.

出版信息

J R Soc Med. 2021 Jul;114(7):347-350. doi: 10.1177/0141076821994274. Epub 2021 Feb 24.

DOI:10.1177/0141076821994274
PMID:33625873
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8415812/
Abstract
摘要