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银屑病关节炎生活质量问卷:翻译、文化调适及巴西葡萄牙语版验证。

Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language.

机构信息

Hospital das Clinicas da Universidade Federal de Pernambuco, Recife, Brazil.

Galen Research Ltd, Manchester, UK.

出版信息

Adv Rheumatol. 2021 Feb 25;61(1):13. doi: 10.1186/s42358-021-00168-6.

Abstract

INTRODUCTION

Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA.

OBJECTIVES

The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL.

METHODS

The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument.

RESULTS

Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare.

CONCLUSION

The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials.

摘要

简介

银屑病关节炎(PsA)是一种多方面的炎症性疾病,可导致关节破坏和生活质量下降。银屑病关节炎生活质量问卷(PsAQoL)是第一个用于确定疾病对银屑病关节炎患者生活质量影响的特定疾病工具。

目的

开发和验证巴西葡萄牙语版的 PsAQoL。

方法

使用两个翻译小组将英国版的 PsAQoL 翻译成巴西葡萄牙语。然后,使用新的患者样本检查该翻译的表面效度和结构效度。最后,对 52 名银屑病关节炎患者进行了测试-重测验证研究。该调查包括诺丁汉健康概况(NHP)作为比较工具。

结果

新改编的内部一致性和可重复性都非常好(分别为 0.91 和 0.90)。PsAQoL 的得分与比较测量值的相关性如预期的那样,该工具能够检测到与感知的银屑病关节炎严重程度、一般健康状况和发作有关的得分差异。

结论

巴西版的 PsAQoL 易于理解和完成,具有极好的可靠性和结构效度。新的衡量标准将成为常规银屑病关节炎实践和临床试验中的一个有价值的新工具。

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