Rheumatology Department, Centro Hospitalar do Baixo Vouga, E.P.E. Aveiro, Av. Artur Ravara, 3810-501, Aveiro, Portugal.
Faculdade de Medicina, Universidade de Coimbra, Coimbra, Portugal.
Rheumatol Int. 2018 Feb;38(2):249-254. doi: 10.1007/s00296-017-3862-7. Epub 2017 Oct 30.
Psoriatic arthritis (PsA) has a strong negative impact on the quality of life of patients. The Psoriatic Arthritis Quality of Life (PsAQoL) questionnaire is a disease-specific instrument developed to measure the quality of life in patients with PsA. The aims of this study were to culturally adapt the questionnaire for Portugal and evaluate its reliability and validity in patients with PsA. The original UK English version of the PsAQoL was translated into Portuguese by a bilingual and lay panel. Structured cognitive debriefing interviews were conducted with ten PsA patients. The Portuguese PsAQoL was subsequently applied to PsA patients followed at the Rheumatology Department of Centro Hospitalar do Baixo Vouga, E.P.E. To assess reproducibility, 30 patients with PsA completed the Portuguese PsAQoL on two occasions, 2 weeks apart. A larger sample was recruited to determine internal consistency and construct validity. The Nottingham Health Profile (NHP) was used as a comparator instrument. Translation and adaptation were successful. Cronbach´s alpha for the Portuguese version of the PsAQoL was 0.91 and the test-retest reliability was 0.93. The PsAQoL could distinguish between groups of patients defined by self-reported general health status, self-reported severity of PsA and flare of arthritis. There was a positive correlation between the total score of the PsAQoL and each of the sections of the NHP. The Portuguese version of the PsAQoL was found to be relevant, understandable and easy to complete, reliable and valid.
银屑病关节炎(PsA)对患者的生活质量有很大的负面影响。Psoriatic Arthritis Quality of Life(PsAQoL)问卷是一种专门用于衡量 PsA 患者生活质量的疾病特异性工具。本研究的目的是对该问卷进行葡萄牙文化适应性改编,并评估其在 PsA 患者中的可靠性和有效性。原始的英国英语版 PsAQoL 由双语和外行小组翻译成葡萄牙语。对十名 PsA 患者进行了结构化认知性访谈。随后,在 Centro Hospitalar do Baixo Vouga,E.P.E.的风湿病科对 PsA 患者进行了葡萄牙版 PsAQoL 的评估。为了评估可重复性,30 名 PsA 患者在两周的时间间隔内两次完成了葡萄牙版 PsAQoL。为了确定内部一致性和结构有效性,招募了更多的样本。使用 Nottingham Health Profile(NHP)作为比较工具。翻译和改编是成功的。葡萄牙版 PsAQoL 的 Cronbach's alpha 为 0.91,测试-重测可靠性为 0.93。PsAQoL 可以区分自我报告的一般健康状况、自我报告的 PsA 严重程度和关节炎发作的患者群体。PsAQoL 的总分与 NHP 的各个部分呈正相关。葡萄牙版 PsAQoL 具有相关性、可理解性和易于完成、可靠性和有效性。