“以一颗快乐的心做力所能及的事”:一项心肌梗死后患者和家庭成员身体活动体验的纵向研究。

"Do what you can with a happy heart": a longitudinal study of patient and family members' lived experiences of physical activity post-myocardial infarction.

机构信息

Physical Activity Exchange, Research Institute for Sport and Exercise Sciences, Liverpool John Moores University, Liverpool, UK.

School of Nursing and Allied Health, Liverpool John Moores University, Liverpool, UK.

出版信息

Disabil Rehabil. 2022 Jul;44(14):3661-3670. doi: 10.1080/09638288.2021.1878560. Epub 2021 Mar 1.

Abstract

PURPOSE

Physical activity (PA) post-myocardial infarction (MI) can reduce risk of reoccurrence and mortality. Yet uptake of PA through cardiac rehabilitation (CR) is poor, and little is known about the long-term PA behaviour of cardiac patients. This study aimed to explore the lived experiences of patients' engagement with PA post-MI, together with the experiences of their family.

METHODS

Longitudinal interviews with six family-dyads were conducted which drew on interpretative phenomenology to understand the lived experiences of PA for post-MI patients and family members.

RESULTS

Participants described a journey that involved leaving "normality" (doing what PA they wanted and when) and transitioning to a new "normality" (being active within post-MI parameters). This journey was expressed through feelings of "I can't do what I was doing before," "finding my way," and "accepting this way".

CONCLUSION

The role of family within the patient's journey was complex, with PA identity, beliefs, and fear of MI re-occurrence influencing PA support both positively and negatively. PA engagement post-MI is a dynamic and interactive process within which the family can have an important influence.IMPLICATIONS FOR REHABILITATIONThe process of (re-)engaging in physical activity post-myocardial infarction involves a complex journey towards acceptance of a new "normality".Family play an important role in regulating and supporting patients' physical activity during the rehabilitation process.Promoting positive health beliefs and helping families understand what, how and when patients should be physically active may optimise the rehabilitation journey for post-myocardial infarction patients.

摘要

目的

心肌梗死后进行身体活动(PA)可降低再次发作和死亡的风险。然而,通过心脏康复(CR)进行的 PA 摄取情况不佳,并且对心脏患者的长期 PA 行为知之甚少。本研究旨在探讨心肌梗死后患者参与 PA 的体验,以及他们的家人的体验。

方法

对 6 个家庭对子进行了纵向访谈,采用解释现象学来理解心肌梗死后患者和家庭成员进行 PA 的体验。

结果

参与者描述了一段旅程,他们离开了“正常”(进行他们想做的和何时进行 PA),并过渡到了一个新的“正常”(在心肌梗死后的参数范围内进行活动)。这种转变表现为“我不能再做以前做的事情了”、“寻找方法”和“接受这种方式”的感受。

结论

家庭在患者旅程中的作用是复杂的,PA 身份、信念和对心肌梗死再次发作的恐惧会对 PA 支持产生积极和消极的影响。心肌梗死后的 PA 参与是一个动态和互动的过程,家庭可以在此过程中发挥重要作用。

康复的意义

心肌梗死后重新开始进行身体活动的过程涉及到接受新的“正常”状态的复杂旅程。

家庭在康复过程中在调节和支持患者的身体活动方面发挥着重要作用。

促进积极的健康信念并帮助家庭了解患者应该进行何种、何时以及如何进行身体活动,可能会优化心肌梗死后患者的康复过程。

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