Graduate Program in Rehabilitation Sciences, Universidade Federal de Minas Gerais, Belo Horizonte, MG, Brazil.
Teachers College, Columbia University, New York, NY, USA.
Phys Occup Ther Pediatr. 2021;41(6):601-619. doi: 10.1080/01942638.2021.1891186. Epub 2021 Mar 2.
To investigate the feasibility and the preliminary effects of an individualized intensive goal training for adolescents with cerebral palsy (CP).
Twelve adolescents with CP (12-17 years old, MACS II-III, GMFCS I-IV) identified functional goals to be practiced three hours/day, five days/week, for two weeks. The feasibility aspects included the participant's adherence (i.e., daily logs), the adequacy of the instruments used, and the participant's satisfaction with the intervention (i.e., structured questionnaire). Outcome measures included the Canadian Occupational Performance Measure (COPM), Pediatric Evaluation of Disability Inventory (PEDI) (self-care; mobility), Children Helping Out: Responsibilities, Expectations and Supports (CHORES), Participation and Environment Measure-Children and Youth (PEM-CY) (home) and Box and Blocks Test (BBT). Assessments were conducted one month and two days before the intervention, immediately and three months after the intervention. Friedman tests were used to test time-related differences in the outcome measures.
All adolescents completed and reported satisfaction with the proposed intervention. Significant improvements were observed in performance and satisfaction (COPM), in functional skills and caregiver assistance in self-care and in the performance of household tasks. There were no significant differences in mobility skills, independence in mobility or household tasks, home participation, or manual dexterity.
The intensive training was feasible and promoted improvements in functional goals and daily functioning of adolescents with CP.
探讨个体化强化目标训练对脑瘫青少年（CP）的可行性和初步效果。
12 名 CP 青少年（12-17 岁，MACS II-III，GMFCS I-IV）确定了要练习的功能目标，每天练习 3 小时，每周练习 5 天。可行性方面包括参与者的依从性（即日常日志）、所使用仪器的充分性以及参与者对干预的满意度（即结构化问卷）。结局测量包括加拿大职业表现量表（COPM）、儿童残疾评估量表（PEDI）（自理；移动）、儿童帮助：责任、期望和支持（CHORES）、参与和环境衡量儿童和青年（PEM-CY）（家庭）和方块和方块测试（BBT）。在干预前一个月零两天、干预后立即和三个月进行评估。采用 Friedman 检验检验结局测量的时间相关差异。
所有青少年均完成并报告对拟议干预措施的满意度。在表现和满意度（COPM）、自理和家务活动的功能技能和照顾者辅助、以及家务活动表现方面，均观察到显著改善。在移动技能、移动或家务活动的独立性、家庭参与度或手眼协调方面，无显著差异。
强化训练是可行的，可促进 CP 青少年的功能目标和日常功能的改善。
