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脑瘫患儿与非脑瘫儿童及青少年在不同环境中的参与情况:一项探索性研究。

Participation of Children and Youth with and Without Cerebral Palsy Across Settings: An Exploratory Study.

作者信息

Pierce Teresa, Fiss Alyssa LaForme

机构信息

Department of Physical Therapy, Philadelphia College of Osteopathic Medicine, Georgia Campus, Suwanee, GA 30024, USA.

School of Physical Therapy, Texas Woman's University, Denton, TX 76204, USA.

出版信息

Children (Basel). 2025 May 29;12(6):707. doi: 10.3390/children12060707.

DOI:10.3390/children12060707
PMID:40564665
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12191390/
Abstract

Children with disabilities experience greater participation restrictions in life activities than children without disabilities. This study aimed to explore differences in participation of children/youth with and without cerebral palsy (CP) across home, school, and community settings, and examine participation of children with CP across gross motor function levels, age groups, gender, and income levels. This was a cross-sectional survey study of parents of children with CP ( = 20) and without CP ( = 20) over a three-month period to investigate the frequency of participation/level of involvement across settings. Participation was assessed using the Participation and Environment Measure for Children and Youth© (PEM-CY), a parent-report measure for children and youth, ages 5 to 17 that explores communication in home, school, and community environments. Significantly greater frequency of participation at home and in the community was found in children without CP. Participation at school was not significantly different between the groups and there were no differences in level of involvement, gender, or income. In children with CP, motor function impacted participation in home and school, and age significantly influenced school participation. Participation in life activities is important for overall child development, health, and well-being; however, children with CP participate less than their typically developing peers. The ability to collect and analyze the frequency of participation and level of involvement across home, school, and community environments using one outcome measure provides valuable information for programming, intervention planning, and potential environment modifications that could improve participation in children with CP.

摘要

与无残疾儿童相比,残疾儿童在生活活动中的参与受限情况更为严重。本研究旨在探讨患与未患脑瘫(CP)的儿童/青少年在家庭、学校和社区环境中的参与差异,并考察患CP儿童在粗大运动功能水平、年龄组、性别和收入水平方面的参与情况。这是一项为期三个月的横断面调查研究,研究对象为患CP儿童( = 20)和未患CP儿童( = 20)的家长,以调查各环境下的参与频率/参与程度。使用《儿童和青少年参与及环境测量量表》(PEM-CY)评估参与情况,这是一项针对5至17岁儿童和青少年的家长报告量表,用于探究家庭、学校和社区环境中的交流情况。研究发现,未患CP的儿童在家中和社区的参与频率显著更高。两组在学校的参与情况无显著差异,在参与程度、性别或收入方面也无差异。在患CP的儿童中,运动功能影响在家中和学校的参与,年龄对学校参与有显著影响。参与生活活动对儿童的全面发展、健康和幸福很重要;然而,患CP的儿童比发育正常的同龄人参与得更少。使用单一结果测量方法收集和分析家庭、学校和社区环境中的参与频率和参与程度,可为规划、干预计划制定以及可能改善患CP儿童参与情况的环境调整提供有价值的信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1e1f/12191390/73cb48828eae/children-12-00707-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1e1f/12191390/73cb48828eae/children-12-00707-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1e1f/12191390/73cb48828eae/children-12-00707-g001.jpg

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本文引用的文献

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Impact of social participation, motor, and cognitive functioning on quality of life in children with Cerebral Palsy.社会参与、运动及认知功能对脑瘫患儿生活质量的影响。
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脑瘫儿童在目标导向和 FES 辅助自行车运动方案后的功能维持。
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Participation in Daily Life: Influence on Quality of Life in Ambulatory Children with Cerebral Palsy.日常生活参与度:对非卧床脑瘫儿童生活质量的影响
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Understanding participation of children with cerebral palsy in family and recreational activities.了解脑瘫儿童在家庭和娱乐活动中的参与情况。
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Excellence in Promoting Participation: Striving for the 10 Cs-Client-Centered Care, Consideration of Complexity, Collaboration, Coaching, Capacity Building, Contextualization, Creativity, Community, Curricular Changes, and Curiosity.促进参与方面的卓越表现:努力实现十个C——以客户为中心的护理、考虑复杂性、协作、指导、能力建设、情境化、创造力、社区、课程变革和好奇心。
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