Division of Rheumatology, Department of Social Work Programs.
Department of Medicine, Montefiore Medical Center, Wakefield Campus, Albert Einstein College of Medicine, Bronx.
J Clin Rheumatol. 2022 Mar 1;28(2):e340-e347. doi: 10.1097/RHU.0000000000001714.
We identified 20 adult patients with UCTD enrolled in the UCTD and Overlap Registry at our tertiary care level hospital. A licensed clinical social worker administered a 30-minute semistructured interview by telephone. The standardized questionnaire consisted of 14 open-ended questions on UCTD. A team of physicians, research coordinators, and a social worker used grounded theory to analyze the qualitative data and identify themes.
Among 14/20 study participants (100% female; mean age, 53.6 ± 13.2 years [range, 27-74 years]), all had at least an associate's/bachelor's degree; 9 (64%) were White. The mean disease duration was 14.5 ± 13.5 years (range, 0.5-44 years). Nine study participants (64%) were engaged in counseling or mindfulness training. Ten specific psychosocial themes and categories emerged, including the need for professional guidance and peer and family support to increase awareness, reduce isolation, and promote self-efficacy.
Emerging themes from semistructured interviews of women with UCTD at a major academic center suggest the need for psychosocial interventions (e.g., patient support groups, educational materials, peer counselors) to help UCTD patients manage and cope with their illness. Future studies evaluating the psychosocial impact of UCTD diagnosis on diverse cohorts are needed.
我们在我们的三级护理医院的UCTD 和重叠登记处确定了 20 名患有UCTD 的成年患者。一名持照临床社会工作者通过电话进行了 30 分钟的半结构化访谈。标准化问卷由 14 个关于 UCTD 的开放式问题组成。一组医生、研究协调员和社会工作者使用扎根理论来分析定性数据并确定主题。
在 20 名研究参与者中的 14 名（100%为女性；平均年龄 53.6±13.2 岁[范围，27-74 岁]）中，所有人至少都拥有副学士/学士学位；9 名（64%）为白人。平均疾病持续时间为 14.5±13.5 年（范围，0.5-44 年）。9 名研究参与者（64%）接受过咨询或正念训练。出现了 10 个具体的社会心理主题和类别，包括需要专业指导以及同伴和家庭支持，以提高认识、减少孤立感并增强自我效能感。
在主要学术中心对 UCTD 女性进行半结构化访谈后出现的主题表明，需要进行社会心理干预（例如，患者支持小组、教育材料、同伴顾问），以帮助 UCTD 患者管理和应对他们的疾病。需要对不同队列的 UCTD 诊断的心理社会影响进行未来的研究。
