Department of Neurology, University Hospital Linköping, 58185 Linköping, Sweden.
Department of Health, Medicine and Caring Sciences, Linköping University, 58183 Linköping, Sweden.
Int J Environ Res Public Health. 2021 Feb 24;18(5):2223. doi: 10.3390/ijerph18052223.
Nursing interventions for persons affected by long-term conditions should focus on providing support to enhance the ability to manage disease in everyday life. Many clinical nurses feel they have inadequate training or experience to provide self-management support in a beneficial and structured way. This study explores the process towards independent self-care and management of disease in persons affected by Parkinson's disease and the support required from healthcare to achieve this. It presents a nursing model to guide nurses in providing self-management support in the clinical care encounter.
The results from three previously published articles investigating a self-management support program for persons with Parkinson's disease were combined to form a new data set, and analyzed using qualitative thematic analysis.
Three separate, but interrelated, themes were identified, which described the process towards self-management of disease as expressed by the participants of the self-management program. Themes describe the factors important for developing and improving self-management abilities and actions. The results were applied to Orem's Self-care deficit theory to suggest a model of self-management support in the clinical nursing encounter.
This study investigated factors important for self-management and highlighted the unique contribution and focus of nursing support to promote independent self-care.
受长期疾病影响的患者的护理干预应侧重于提供支持，以增强在日常生活中管理疾病的能力。许多临床护士感到他们缺乏足够的培训或经验，无法以有益和结构化的方式提供自我管理支持。本研究探讨了受帕金森病影响的患者实现独立自我护理和疾病管理的过程，以及实现这一目标所需的医疗保健支持。它提出了一个护理模式，以指导护士在临床护理中提供自我管理支持。
将先前发表的三篇研究帕金森病患者自我管理支持计划的文章的结果合并形成一个新的数据集，并使用定性主题分析进行分析。
确定了三个独立但相互关联的主题，这些主题描述了自我管理计划参与者表达的疾病自我管理过程。主题描述了对发展和提高自我管理能力和行为很重要的因素。结果应用于奥瑞姆的自我护理缺陷理论，提出了一种在临床护理中提供自我管理支持的模式。
本研究调查了自我管理的重要因素，并强调了护理支持对促进独立自我护理的独特贡献和重点。
