Department of Medical and Health Science, Linköping University, Linköping, Sweden.
The PRO-CARE Group, School of Health and Society, Kristianstad University, Kristianstad, Sweden.
Nurs Health Sci. 2020 Sep;22(3):741-748. doi: 10.1111/nhs.12721. Epub 2020 Apr 28.
Persons with Parkinson's disease and their care partners want support from health care to develop the skills to handle everyday life with the long-term condition. Earlier findings indicate that participants of the self-management program Swedish National Parkinson School experience several benefits of the program. The purpose of this qualitative observational study was to explore if participants had implemented the strategies of self-monitoring included in the program and use them to communicate health care status and needs in clinical encounters. Data were collected 3 to 15 months after participation in the program and analyzed using constant comparative analysis. Three categories were evident: "Self-observation in everyday life," "Self-care activities to promote health," and "Managing emotional impact of Parkinson's Disease." Categories were linked together in a core category that highlight the use of self-management strategies described by participants during clinical encounters. Results confirmed that persons with Parkinson's disease and care partners use the techniques of self-observation in their everyday lives. Observations of effects in clinical care can be a valuable approach to evaluate the outcomes educational interventions and their benefits for individuals and health care.
帕金森病患者及其护理人员希望获得医疗保健方面的支持，以培养应对长期疾病的日常生活技能。早期研究结果表明，瑞典国家帕金森学校自我管理计划的参与者体验到了该计划的多项益处。本定性观察研究的目的是探讨参与者是否已经实施了该计划中包含的自我监测策略，并将其用于在临床就诊中交流健康状况和需求。数据在项目参与后 3 至 15 个月收集，并使用恒定比较分析进行分析。有三个类别是明显的：“日常生活中的自我观察”、“促进健康的自我护理活动”和“管理帕金森病的情绪影响”。类别通过核心类别联系在一起，突出了参与者在临床就诊中描述的自我管理策略的使用。研究结果证实，帕金森病患者及其护理人员在日常生活中使用自我观察技术。观察临床护理中的效果可能是评估教育干预及其对个人和医疗保健的益处的一种有价值的方法。
