Aborisade Richard A
Department of Sociology, Olabisi Onabanjo University, P.M.B. 2002, Ago Iwoye, Ogun State Nigeria.
J Fam Violence. 2021;36(8):1081-1094. doi: 10.1007/s10896-021-00264-7. Epub 2021 Feb 28.
In an attempt to address the paucity of research examining the childhood experience of people living with albinism within family context, the present study explored family-based violence and prejudicial treatments against children born with albinism in Nigeria. In addition, issues that traumatized children with albinism (CWA) within their family setting, and the coping strategies they found effective were identified. The research was located within an interpretive qualitative paradigm and framed within the theories of 'othering,' self-esteem, and family system. Interviews were conducted with 62 adults living with albinism who were raised in family settings. The prejudicial treatments and family-based violent behaviors experienced by participants were explored, and a thematic analysis of the narratives was carried out. Findings confirm the existence of family violence and prejudice regarding albinism. Prejudices on albinism were found to result in parents denying CWA of educational and vocational sponsorship, cordial family relationship, social interactions and attendance of social events. Family members' perceptions of CWA were reportedly influenced by social and religious inclinations. Families were found not to be only violent with CWA but also facilitating institutional violence by religious organizations. Participants expressed developing emotional problems like paranoia, anger, depression, feelings of powerlessness, and low self-esteem, while they utilized varieties of emotion-oriented coping strategies during their childhood experiences. CWA are subjected to prejudice and violence within their families that are unique and deserving of research and policy interventions. Therefore, family-based orientations, screening for family violence, religious and social groups' support for people living with albinism (PWA) were suggested.
为了解决在家庭环境中研究白化病患者童年经历的研究匮乏的问题,本研究探讨了尼日利亚针对白化病患儿的家庭暴力和歧视性待遇。此外,还确定了在家庭环境中给白化病患儿(CWA)造成创伤的问题,以及他们认为有效的应对策略。该研究采用解释性定性范式,并以“他者化”、自尊和家庭系统理论为框架。对62名在家庭环境中长大的白化病成年患者进行了访谈。探讨了参与者所经历的歧视性待遇和基于家庭的暴力行为,并对这些叙述进行了主题分析。研究结果证实了存在针对白化病的家庭暴力和偏见。研究发现,对白化病的偏见导致父母拒绝为白化病患儿提供教育和职业资助、融洽的家庭关系、社交互动以及参加社交活动。据报道,家庭成员对白化病患儿的看法受到社会和宗教倾向的影响。研究发现,家庭不仅对白化病患儿实施暴力,还助长宗教组织的制度性暴力。参与者表示在童年经历中出现了诸如偏执、愤怒、抑郁、无力感和自卑等情绪问题,同时他们在童年经历中采用了各种以情绪为导向的应对策略。白化病患儿在家庭中遭受独特的偏见和暴力,值得进行研究和政策干预。因此,建议以家庭为导向,筛查家庭暴力,宗教和社会群体对白化病患者(PWA)提供支持。