Suppr超能文献

中风幸存者及其非正式护理人员的互联网接入与使用情况:横断面研究。

Internet Access and Usage Among Stroke Survivors and Their Informal Caregivers: Cross-sectional Study.

作者信息

Naqvi Imama Ali, Montiel Tahani Casameni, Bittar Yazan, Hunter Norma, Okpala Munachi, Johnson Constance, Weiner Mark G, Savitz Sean, Sharrief Anjail, Beauchamp Jennifer Elizabeth Sanner

机构信息

Division of Stroke and Cerebrovascular Diseases, Department of Neurology, Columbia University Irving Medical Center, New York, NY, United States.

Department of Nursing Research, Cizik School of Nursing, The University of Texas Health Science Center at Houston, Houston, TX, United States.

出版信息

JMIR Form Res. 2021 Mar 8;5(3):e25123. doi: 10.2196/25123.

Abstract

BACKGROUND

Web-based interventions have shown promise for chronic disease management but have not been widely applied to populations with stroke. Existing barriers may inhibit the adoption of web-based interventions among stroke survivors and necessitate the involvement of informal caregivers. However, limited information is available on internet accessibility and usability among stroke survivors and their caregivers.

OBJECTIVE

This study aims to investigate internet access and usage in a cohort of stroke survivors and their caregivers.

METHODS

A cross-sectional survey was conducted with 375 participants (248 stroke survivors and 127 caregivers). Descriptive statistics were generated using cross-tabulation. Comparisons with categorical data were conducted using the chi-square test, whereas the Mann-Whitney U test was used for comparisons involving ordinal variables.

RESULTS

Overall, 86.1% (323/375) of the participants reported having internet access. Caregivers were more likely than stroke survivors to access the internet (N=375, χ=18.5, P<.001) and used text messaging (n=321, χ=14.7, P<.001). Stroke survivors and caregivers with internet access were younger than stroke survivors and caregivers without internet access. The highest number of participants who reported internet access were non-Hispanic White. Smartphones were the most common devices used to access the internet. Email was the most common type of internet usage reported. Patients who survived for >12 months after a stroke reported higher internet access than those who survived <3 months (P<.001). The number of hours per week spent using the internet was higher for caregivers than for stroke survivors (P<.001).

CONCLUSIONS

Future feasibility and acceptability studies should consider the role of the informal caregiver, participant age, race and ethnicity, the use of smartphone apps, email and text correspondence, and the amount of time elapsed since the stroke event in the design and implementation of web-based interventions for populations with stroke.

摘要

背景

基于网络的干预措施在慢性病管理方面已显示出前景,但尚未广泛应用于中风人群。现有的障碍可能会抑制中风幸存者采用基于网络的干预措施,因此需要非正式护理人员的参与。然而,关于中风幸存者及其护理人员的互联网可及性和可用性的信息有限。

目的

本研究旨在调查一组中风幸存者及其护理人员的互联网接入和使用情况。

方法

对375名参与者(248名中风幸存者和127名护理人员)进行了横断面调查。使用交叉列表生成描述性统计数据。对分类数据的比较采用卡方检验,而曼-惠特尼U检验用于涉及有序变量的比较。

结果

总体而言,86.1%(323/375)的参与者报告可以访问互联网。护理人员比中风幸存者更有可能访问互联网(N = 375,χ = 18.5,P <.001)并使用短信(n = 321,χ = 14.7,P <.001)。可以访问互联网的中风幸存者和护理人员比无法访问互联网的中风幸存者和护理人员更年轻。报告可以访问互联网的参与者中,非西班牙裔白人的数量最多。智能手机是最常用的上网设备。电子邮件是报告中最常见的互联网使用类型 。中风后存活超过12个月的患者报告的互联网接入率高于存活时间小于3个月的患者(P <.001)。护理人员每周使用互联网的小时数高于中风幸存者(P <.001)。

结论

未来的可行性和可接受性研究应在为中风人群设计和实施基于网络的干预措施时,考虑非正式护理人员的作用、参与者的年龄、种族和民族、智能手机应用程序的使用、电子邮件和短信通信以及中风事件发生后的时间长度。

相似文献

7
9
Medical Mobile Applications for Stroke Survivors and Caregivers.
J Stroke Cerebrovasc Dis. 2019 Nov;28(11):104318. doi: 10.1016/j.jstrokecerebrovasdis.2019.104318. Epub 2019 Aug 12.
10
Anxiety and depression associated with caregiver burden in caregivers of stroke survivors with spasticity.
Arch Phys Med Rehabil. 2013 Sep;94(9):1731-6. doi: 10.1016/j.apmr.2013.03.014. Epub 2013 Mar 30.

引用本文的文献

1
Introducing the Tele-OCS: Preliminary evidence of validity for a remotely administered version of The Oxford Cognitive Screen.
Health Open Res. 2025 Jul 9;5:8. doi: 10.12688/healthopenres.13291.3. eCollection 2023.
2
UI/UX design requirements for young stroke survivors: recommendations from the literature.
NPJ Digit Med. 2025 Jul 9;8(1):417. doi: 10.1038/s41746-025-01796-8.
4
Quality of life measures for people following stroke: a structured content review.
Qual Life Res. 2025 Apr;34(4):893-912. doi: 10.1007/s11136-024-03877-9. Epub 2024 Dec 21.
7
Text Message-Based Assessment of 90-Day Modified Rankin Scale After Stroke.
J Am Heart Assoc. 2024 May 21;13(10):e033301. doi: 10.1161/JAHA.123.033301. Epub 2024 Apr 30.
10
Inequities in Telemedicine Use Among Patients With Stroke and Cerebrovascular Diseases: A Tricenter Cross-sectional Study.
Neurol Clin Pract. 2023 Apr;13(2):e200148. doi: 10.1212/CPJ.0000000000200148. Epub 2023 Mar 14.

本文引用的文献

1
Caregiver Burden and Associated Factors Among Informal Caregivers of Stroke Survivors.
J Neurosci Nurs. 2020 Dec;52(6):277-283. doi: 10.1097/JNN.0000000000000552.
2
Optimizing the Use Of Teleneurology During the COVID-19 Pandemic.
Telemed J E Health. 2020 Oct;26(10):1197-1198. doi: 10.1089/tmj.2020.0109. Epub 2020 Apr 24.
3
5
Risk Factors for Ischemic Stroke in Younger Adults: A Focused Update.
Stroke. 2020 Mar;51(3):729-735. doi: 10.1161/STROKEAHA.119.024156. Epub 2020 Feb 12.
6
Heart Disease and Stroke Statistics-2020 Update: A Report From the American Heart Association.
Circulation. 2020 Mar 3;141(9):e139-e596. doi: 10.1161/CIR.0000000000000757. Epub 2020 Jan 29.
7
A Retrospective Study to Identify Novel Factors Associated with Post-stroke Anxiety.
J Stroke Cerebrovasc Dis. 2020 Feb;29(2):104582. doi: 10.1016/j.jstrokecerebrovasdis.2019.104582. Epub 2019 Dec 16.
8
Telemedicine in neurology: Telemedicine Work Group of the American Academy of Neurology update.
Neurology. 2020 Jan 7;94(1):30-38. doi: 10.1212/WNL.0000000000008708. Epub 2019 Dec 4.
10
The REDCap consortium: Building an international community of software platform partners.
J Biomed Inform. 2019 Jul;95:103208. doi: 10.1016/j.jbi.2019.103208. Epub 2019 May 9.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验