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就业障碍与促进因素:多发性硬化症与脊髓损伤患者的比较。

Barriers and Facilitators to Employment: A Comparison of Participants With Multiple Sclerosis and Spinal Cord Injury.

机构信息

College of Health Professions, Medical University of South Carolina, Charleston, SC.

College of Health Professions, Medical University of South Carolina, Charleston, SC.

出版信息

Arch Phys Med Rehabil. 2021 Aug;102(8):1556-1561. doi: 10.1016/j.apmr.2021.02.015. Epub 2021 Mar 6.

Abstract

OBJECTIVE

To compare self-reported barriers and facilitators to employment among employed and unemployed participants with multiple sclerosis (MS) and spinal cord injury (SCI).

DESIGN

Cross-sectional study using self-report assessment obtained by mail or online.

SETTING

Medical university in the southeastern United States.

PARTICIPANTS

Participants (N=2624) identified from either a specialty hospital or a state-based surveillance system in the southeastern United States, including 1234 with MS and 1390 with SCI. All participants were aged <65 years at the time of assessment.

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

Self-reported barriers and facilitators to employment.

RESULTS

Overall, the MS participants reported more barriers, particularly stress, cognition, and fatigue, whereas those with SCI were more likely to report not having the proper education and training, resources, transportation, and attendant care. Follow-up analyses broken down by employment status indicated that several barriers and facilitators were significantly related to diagnosis for either employed or unemployed participants, but not both. Among those employed, participants with SCI were more likely to report they could not do the same types of jobs as they could pre-SCI and those with MS were more likely to state that they did not know much about jobs for people with disabilities (no differences were noted for these variables among unemployed participants). Unemployed individuals with SCI were more likely to report that the jobs for which they were trained were not accessible.

CONCLUSIONS

The primary barriers for individuals with MS revolve around the condition itself, whereas the barriers for SCI appear to be more related to modifiable factors. Vocational rehabilitation specialists need to identify diagnostic-specific barriers to promote employment outcomes.

摘要

目的

比较患有多发性硬化症(MS)和脊髓损伤(SCI)的就业参与者和失业参与者报告的就业障碍和促进因素。

设计

使用通过邮件或在线获得的自我报告评估进行的横断面研究。

设置

美国东南部的一所医科大学。

参与者

参与者(N=2624)来自美国东南部的一家专科医院或州级监测系统,其中包括 1234 名 MS 患者和 1390 名 SCI 患者。所有参与者在评估时年龄均<65 岁。

干预措施

不适用。

主要观察指标

就业障碍和促进因素的自我报告。

结果

总体而言,MS 参与者报告了更多的障碍,特别是压力、认知和疲劳,而 SCI 参与者则更有可能报告缺乏适当的教育和培训、资源、交通和随行护理。按就业状况进行的后续分析表明,有几个障碍和促进因素与就业或失业参与者的诊断显著相关,但并非两者都相关。在就业者中,SCI 参与者更有可能报告他们无法从事与 SCI 前相同类型的工作,而 MS 参与者更有可能表示他们对残疾人的工作知之甚少(失业参与者在这些变量上没有差异)。接受过培训的失业 SCI 参与者更有可能报告说他们接受培训的工作无法获得。

结论

MS 个体的主要障碍与疾病本身有关,而 SCI 的障碍似乎与可改变的因素更相关。职业康复专家需要确定诊断特异性障碍,以促进就业结果。

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