Department of Urology, Davis School of Medicine, University of California, Sacramento, CA, USA.
Cedars-Sinai Center for Outcomes Research and Education (CS-CORE), Los Angeles, CA, USA.
Int Urogynecol J. 2021 Oct;32(10):2729-2736. doi: 10.1007/s00192-021-04686-1. Epub 2021 Mar 12.
To assess women's knowledge, patient experience, and treatment decision making regarding overactive bladder (OAB) using digital ethnography.
Online posts were identified using a data mining service. Two hundred randomized posts were reviewed and coded using grounded theory. We then applied a latent Dirichlet allocation (LDA) probabilistic topic modeling process to review the entire collection of identified posts.
A total of 2618 posts by 1867 unique users from 203 different websites were identified. Our analysis yielded six themes: the impact of OAB on quality of life, patient-physician interactions, online engagement, symptom management, patient knowledge acquisition, and alternative therapies.
Overall, online communities are a source of support for women to self-manage the OAB symptom complex and help overcome treatment pathway challenges. Digital ethnography provides insight into patient knowledge and barriers to patient-centered care, which are important to improve patient outreach. Additionally, we identify similar findings to prior work, indicating the reliability of studying social media.
通过数字民族志评估女性对膀胱过度活动症（OAB）的知识、患者体验和治疗决策。
使用数据挖掘服务识别在线帖子。随机审查并使用扎根理论对 200 个帖子进行编码。然后，我们应用潜在狄利克雷分配（LDA）概率主题建模过程来审查已识别帖子的整个集合。
共从 203 个不同网站的 1867 位用户识别出 2618 条帖子。我们的分析产生了六个主题：OAB 对生活质量的影响、医患互动、在线参与、症状管理、患者知识获取和替代疗法。
总的来说，在线社区是女性自我管理 OAB 症状综合和帮助克服治疗途径挑战的支持来源。数字民族志深入了解了患者知识和以患者为中心的护理障碍，这对于改善患者服务很重要。此外，我们发现了与先前工作相似的发现，表明研究社交媒体是可靠的。
