The First Clinical Medical College, Zhejiang Chinese Medical University, Hangzhou, China.
Department of Anesthesiology, The First Affiliated Hospital of Zhejiang Chinese Medical University (Zhejiang Provincial Hospital of Chinese Medicine), Hangzhou, China.
BMC Gastroenterol. 2023 Apr 4;23(1):105. doi: 10.1186/s12876-023-02747-x.
The aim of this study was to explore the experience and perceptions of patients with Crohn's disease in China.
Data mining was used to investigate posts in Crohn's disease online medical communities. The data were collected through the crawler code, and latent Dirichlet allocation (LDA) and grounded theory were used to mine the theme features after data cleaning.
In analyzing the topic characteristics of online posts, LDA divided 6757 posts into 15 topics on four aspects: seeking disease information, making decisions on medication use, psychological burden, and communicating about diet and nutrition.
Overall, social media is patient-centric and helps us better understand the experiences and perceptions of patients. This study can help medical staff predict the thoughts and concerns of Crohn's disease patients during the treatment process, facilitate doctor-patient communication, and assist in the formulation of medical policies.
本研究旨在探讨中国克罗恩病患者的体验和认知。
采用数据挖掘方法对克罗恩病在线医学社区的帖子进行调查。通过爬虫代码收集数据，在数据清理后使用潜在狄利克雷分配（LDA）和扎根理论挖掘主题特征。
在分析在线帖子的主题特征时，LDA 将 6757 篇帖子分为 15 个主题，涉及四个方面：寻求疾病信息、药物使用决策、心理负担以及饮食营养交流。
总体而言，社交媒体以患者为中心，帮助我们更好地了解患者的体验和认知。本研究可以帮助医务人员在治疗过程中预测克罗恩病患者的想法和担忧，促进医患沟通，并协助制定医疗政策。
