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美国世界临终关怀与姑息治疗日首届庆祝活动:虚拟相聚。

The inaugural United States World Hospice and Palliative Care Day Celebration: A virtual coming together.

机构信息

Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY.

Supportive Care Service, Memorial Sloan Kettering Cancer Center, New York, NY.

出版信息

Palliat Support Care. 2021 Apr;19(2):182-186. doi: 10.1017/S1478951521000237.

Abstract

OBJECTIVE

On October 10, 2020, the Memorial Sloan Kettering Cancer Center Supportive Care Service hosted their first-ever United States (US) World Hospice and Palliative Care Day (WHPCD) Celebration. The purpose of this article is to describe the US inaugural event in alignment with the broader goals of WHPCD and provide lessons learned in anticipation of the second annual conference to be held on October 5-6, 2021.

METHODS

Description of the inaugural event in the context of COVID-19 and WHPCD, co-planning conference team reflection, and attendee survey responses.

RESULTS

The Worldwide Hospice Palliative Care Alliance initially launched WHPCD in 2005 as an annual unified day of action to celebrate and support hospice and palliative care around the world. The US-based innovative virtual conference featured 23 interprofessional hospice and palliative care specialists and patient and family caregiver speakers across nine diverse sessions addressing priorities at the intersection of COVID-19, social injustice, and the global burden of serious health-related suffering. Two primary aims guided the event: community building and wisdom sharing. Nearly 270 registrants from at least 16 countries and one dozen states across the US joined the free program focused on both personal and professional development.

SIGNIFICANCE OF RESULTS

Unlike many other academic conferences and professional gatherings that were relegated to online forums due to pandemic-related restrictions, the US WHPCD Celebration was intentionally established to create a virtual coming together for collective reflection on the barriers and facilitators of palliative care delivery amid vast societal change. The goal to ensure a globally relevant and culturally inclusive agenda will continue to draw increased participation at an international level during future annual events. Finally, the transparent and respectful sharing of palliative care team experiences in the year preceding the conference established a safe environment for both individual expression and scholarly discussion.

摘要

目的

2020 年 10 月 10 日,纪念斯隆凯特琳癌症中心支持性护理服务举办了首届美国(美国)世界临终关怀和姑息治疗日(WHPCD)庆祝活动。本文的目的是描述与 WHPCD 更广泛目标一致的美国首届活动,并提供在 2021 年 10 月 5 日至 6 日举行的第二届年度会议的经验教训。

方法

在 COVID-19 和 WHPCD 的背景下描述首届活动、联合规划会议团队的反思以及与会者调查的回应。

结果

全球临终关怀姑息治疗联盟最初于 2005 年发起了 WHPCD,作为一年一度的统一行动日,以庆祝和支持全球的临终关怀和姑息治疗。基于美国的创新虚拟会议以 23 名跨专业的临终关怀和姑息治疗专家以及患者和家庭照顾者为特色,他们在九个不同的会议上发言,重点讨论了 COVID-19、社会不公正和严重健康相关痛苦的全球负担等方面的优先事项。该活动有两个主要目标:社区建设和智慧分享。来自至少 16 个国家和美国十几个州的近 270 名注册者参加了这个免费项目,该项目专注于个人和专业发展。

结果的意义

与许多因疫情限制而被迫转为在线论坛的其他学术会议和专业会议不同,美国 WHPCD 庆祝活动的目的是为了在社会发生巨大变化的背景下,为集体反思临终关怀服务提供一个虚拟的聚会场所,探讨障碍和促进因素。确保一个具有全球相关性和文化包容性的议程的目标将继续在未来的年度活动中吸引更多的国际参与。最后,在会议前一年,以透明和尊重的方式分享临终关怀团队的经验,为个人表达和学术讨论营造了一个安全的环境。

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