Rosa William E, Pettus Katherine I, De Lima Liliana, Silvers Allison, Sinclair Stacie, Radbruch Lukas
Department of Psychiatry & Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York, USA.
International Association for Hospice and Palliative Care, Houston, Texas, USA.
J Palliat Med. 2021 Aug;24(8):1240-1245. doi: 10.1089/jpm.2021.0182. Epub 2021 Apr 30.
The escalating global burden of serious health-related suffering makes the need for funded policies that integrate palliative care (PC) into the continuum of services more urgent than ever. Palliative specialists are uniquely positioned to merge their clinical expertise with empirical evidence to advocate for improved PC delivery. There is a vital feedback loop between advocacy and clinical practice that palliative specialists can leverage to influence key stakeholders and decision makers and bridge PC policy deficits. Sustained interdisciplinary partnerships are critical to evidence-based PC advocacy that addresses resource gaps, social injustice, and unmet and disparate needs. Although PC advocacy may appear optional or even frivolous at times, it is an essential skill for any practitioner working to improve care for seriously ill individuals and their families. This article highlights 10 pragmatic tips that palliative specialists can use to advocate for policy changes that enhance PC access and equity at institutional, local, national, and global levels.
全球范围内与健康相关的严重痛苦负担不断升级，这使得制定将姑息治疗（PC）纳入连续服务体系的资助政策的需求比以往任何时候都更加紧迫。姑息治疗专家具有独特的优势，能够将临床专业知识与实证证据相结合，以倡导改善姑息治疗的提供。在倡导与临床实践之间存在着一个至关重要的反馈循环，姑息治疗专家可以利用这个循环来影响关键利益相关者和决策者，并弥合姑息治疗政策的不足。持续的跨学科伙伴关系对于基于证据的姑息治疗倡导至关重要，这种倡导能够解决资源差距、社会不公以及未满足和不同的需求。尽管姑息治疗倡导有时可能看似可有可无甚至无关紧要，但对于任何致力于改善重症患者及其家庭护理的从业者来说，这都是一项必不可少的技能。本文重点介绍了10条实用技巧，姑息治疗专家可利用这些技巧倡导政策变革，以在机构、地方、国家和全球层面提高姑息治疗的可及性和公平性。
