University of Utah College of Nursing, 10 South 800 East, Salt Lake City, UT, 84112, USA.
University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Curr Oncol Rep. 2021 Mar 14;23(4):39. doi: 10.1007/s11912-021-01034-w.
Sexual and gender minority (SGM) cancer survivors (post-diagnosis to end-of-life) can face inadequate services along the cancer care continuum, including palliative and end-of-life (EOL) care. A growing literature base calls for more research on factors influencing palliative and EOL care access, outcomes, and distinct needs of SGM cancer survivors and caregivers. We analyzed peer-reviewed articles published 2015-present to identify trends.
Ten articles were SGM-focused or inclusive, cancer-focused, and included substantive discussion of palliative and/or EOL care. Four were research studies (three case studies and one qualitative interview study) and six were literature reviews. Recurrent topics included disparities in cancer risk, access, and care; essential cultural and clinical competencies; and need for professional and organizational standards and policies addressing interpersonal and institutional discrimination and inclusion. Provision of equitable, competent palliative and EOL care depends on continued advancements in research, translated into person-centered approaches to care. We discuss implications of findings for improving palliative and EOL care for SGM cancer survivors.
性少数群体和跨性别者（SGM）癌症幸存者（诊断后至生命终点）在癌症治疗全过程中可能面临服务不足的问题，包括姑息治疗和临终关怀。越来越多的文献呼吁对影响 SGM 癌症幸存者和护理人员获得姑息治疗和临终关怀的因素、结局以及他们特殊需求的研究进行更多的研究。我们分析了 2015 年至今发表的同行评议文章，以确定趋势。
有 10 篇文章是专门针对 SGM 群体或包含 SGM 群体的，以癌症为重点，并对姑息治疗和/或临终关怀进行了实质性讨论。其中 4 篇是研究论文（3 篇案例研究和 1 篇定性访谈研究），6 篇是文献综述。反复出现的主题包括癌症风险、获得和护理方面的差异；必要的文化和临床能力；以及对解决人际和机构歧视与包容的专业和组织标准和政策的需求。提供公平、有能力的姑息治疗和临终关怀取决于研究的不断进步，转化为以患者为中心的护理方法。我们讨论了这些发现对改善 SGM 癌症幸存者姑息治疗和临终关怀的影响。
