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The meaning of dying and death for children, their carers, and families: a scoping review.儿童、照料者及其家庭对于死亡和濒死的认知:一项范围综述。
BMC Palliat Care. 2023 Dec 4;22(1):194. doi: 10.1186/s12904-023-01295-1.

本文引用的文献

1
Medical assistance in dying: A paediatric perspective.临终医疗协助:儿科视角
Paediatr Child Health. 2018 May;23(2):125-130. doi: 10.1093/pch/pxx181. Epub 2018 Apr 12.
2
Medical Assistance in Dying at a paediatric hospital.儿科医院的安乐死医疗协助。
J Med Ethics. 2019 Jan;45(1):60-67. doi: 10.1136/medethics-2018-104896. Epub 2018 Sep 21.
3
Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With Cancer.预测儿童癌症患者接受专科儿童姑息治疗的因素及其对临终关怀模式的影响。
J Clin Oncol. 2018 Mar 10;36(8):801-807. doi: 10.1200/JCO.2017.75.6312. Epub 2018 Jan 22.
4
Should Pediatric Euthanasia be Legalized?是否应该使儿科安乐死合法化?
Pediatrics. 2018 Feb;141(2). doi: 10.1542/peds.2017-1343. Epub 2018 Jan 9.
5
Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study.2012年加拿大的儿科姑息治疗:一项横断面描述性研究。
CMAJ Open. 2016 Oct 11;4(4):E562-E568. doi: 10.9778/cmajo.20160054. eCollection 2016 Oct-Dec.
6
A concept analysis of children's agency within the health literature.健康文献中儿童能动性的概念分析。
J Child Health Care. 2016 Dec;20(4):503-511. doi: 10.1177/1367493515620914. Epub 2016 Jul 26.
7
The Groningen protocol--euthanasia in severely ill newborns.格罗宁根方案——重症新生儿安乐死
N Engl J Med. 2005 Mar 10;352(10):959-62. doi: 10.1056/NEJMp058026.

加拿大的儿科安乐死:临终关怀面临的新挑战。

Paediatric euthanasia in Canada: New challenges for end of life care.

作者信息

Lamb Christina Marie

机构信息

Faculty of Nursing, University of Alberta, Edmonton, Alberta.

出版信息

Paediatr Child Health. 2020 Apr 15;26(2):79-81. doi: 10.1093/pch/pxaa051. eCollection 2021 Apr-May.

DOI:10.1093/pch/pxaa051
PMID:33747302
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7962718/
Abstract

Canadians are looking to expand their Medical Assistance in Dying (MAID) program to include mature minors. Yet, little evidence exists to support this expansion. The Council of Canadian Academies released a report in December 2018 indicating that little is known about how mature minors make meaning of end of life care. To address this knowledge gap, research is needed to understand how mature minors make meaning of the dying process in the first place. Since social perceptions drive Canadian health care, practice, and end of life mentalities, the question that needs to be asked is: What is the Canadian perception of a good death for mature minors? To answer this question it is first necessary to examine the meaning that death and dying hold for mature minors, as voiced by mature minors themselves.

摘要

加拿大人希望扩大其医疗协助死亡(MAID)计划,将成熟未成年人纳入其中。然而,几乎没有证据支持这一扩大举措。加拿大科学院理事会于2018年12月发布了一份报告,指出对于成熟未成年人如何理解临终关怀知之甚少。为了填补这一知识空白,首先需要开展研究,以了解成熟未成年人如何理解死亡过程。由于社会观念影响着加拿大的医疗保健、实践及临终心态,因此需要提出的问题是:加拿大人对于成熟未成年人的善终是怎样看待的?要回答这个问题,首先有必要审视成熟未成年人自己所表达的死亡和临终对于他们的意义。