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一款针对多发性硬化症患者的跌倒风险移动健康应用程序的可用性:混合方法研究。

Usability of a Fall Risk mHealth App for People With Multiple Sclerosis: Mixed Methods Study.

作者信息

Hsieh Katherine, Fanning Jason, Frechette Mikaela, Sosnoff Jacob

机构信息

Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign, Urbana, IL, United States.

Department of Internal Medicine, Section on Gerontology and Geriatric Medicine, Wake Forest School of Medicine, Winston-Salem, NC, United States.

出版信息

JMIR Hum Factors. 2021 Mar 22;8(1):e25604. doi: 10.2196/25604.

Abstract

BACKGROUND

Multiple sclerosis (MS) is a chronic, neurodegenerative disease that causes a range of motor, sensory, and cognitive symptoms. Due to these symptoms, people with MS are at a high risk for falls, fall-related injuries, and reductions in quality of life. There is no cure for MS, and managing symptoms and disease progression is important to maintain a high quality of life. Mobile health (mHealth) apps are commonly used by people with MS to help manage their health. However, there are limited health apps for people with MS designed to evaluate fall risk. A fall risk app can increase access to fall risk assessments and improve self-management. When designing mHealth apps, a user-centered approach is critical for improving use and adoption.

OBJECTIVE

The purpose of this study is to undergo a user-centered approach to test and refine the usability of the app through an iterative design process.

METHODS

The fall risk app Steady-MS is an extension of Steady, a fall risk app for older adults. Steady-MS consists of 2 components: a 25-item questionnaire about demographics and MS symptoms and 5 standing balance tasks. Data from the questionnaire and balance tasks were inputted into an algorithm to compute a fall risk score. Two iterations of semistructured interviews (n=5 participants per iteration) were performed to evaluate usability. People with MS used Steady-MS on a smartphone, thinking out loud. Interviews were recorded, transcribed, and developed into codes and themes. People with MS also completed the System Usability Scale.

RESULTS

A total of 3 themes were identified: intuitive navigation, efficiency of use, and perceived value. Overall, the participants found Steady-MS efficient to use and useful to learn their fall risk score. There were challenges related to cognitive overload during the balance tasks. Modifications were made, and after the second iteration, people with MS reported that the app was intuitive and efficient. Average System Usability Scale scores were 95.5 in both iterations, representing excellent usability.

CONCLUSIONS

Steady-MS is the first mHealth app for people with MS to assess their overall risk of falling and is usable by a subset of people with MS. People with MS found Steady-MS to be usable and useful for understanding their risk of falling. When developing future mHealth apps for people with MS, it is important to prevent cognitive overload through simple and clear instructions and present scores that are understood and interpreted correctly through visuals and text. These findings underscore the importance of user-centered design and provide a foundation for the future development of tools to assess and prevent scalable falls for people with MS. Future steps include understanding the validity of the fall risk algorithm and evaluating the clinical utility of the app.

摘要

背景

多发性硬化症(MS)是一种慢性神经退行性疾病,会引发一系列运动、感觉和认知症状。由于这些症状,MS患者跌倒、跌倒相关损伤以及生活质量下降的风险很高。MS无法治愈,控制症状和疾病进展对于维持高质量生活至关重要。MS患者通常使用移动健康(mHealth)应用程序来帮助管理自身健康。然而,专门为MS患者设计的用于评估跌倒风险的健康应用程序数量有限。一款跌倒风险应用程序可以增加获取跌倒风险评估的机会并改善自我管理。在设计mHealth应用程序时,以用户为中心的方法对于提高使用率和采用率至关重要。

目的

本研究的目的是采用以用户为中心的方法,通过迭代设计过程来测试和完善该应用程序的可用性。

方法

跌倒风险应用程序Steady-MS是针对老年人的跌倒风险应用程序Steady的扩展版本。Steady-MS由两个部分组成:一份关于人口统计学和MS症状的包含25个条目的问卷,以及5项站立平衡任务。问卷和平衡任务的数据被输入到一个算法中以计算跌倒风险分数。进行了两轮半结构化访谈(每轮n = 5名参与者)以评估可用性。MS患者在智能手机上使用Steady-MS,并边思考边说出来。访谈进行了录音、转录,并形成了代码和主题。MS患者还完成了系统可用性量表。

结果

总共确定了3个主题:直观的导航、使用效率和感知价值。总体而言,参与者发现Steady-MS使用起来很高效,并且对于了解自己的跌倒风险分数很有用。在平衡任务期间存在与认知过载相关的挑战。进行了修改,在第二轮迭代之后,MS患者报告该应用程序直观且高效。两轮迭代中的系统可用性量表平均得分均为95.5,代表可用性极佳。

结论

Steady-MS是首款用于MS患者评估其总体跌倒风险的mHealth应用程序,并且一部分MS患者可以使用。MS患者发现Steady-MS对于了解他们的跌倒风险既可用又有用。在为MS患者开发未来的mHealth应用程序时,通过简单明了的说明来防止认知过载,并通过视觉和文本正确理解和解释呈现的分数非常重要。这些发现强调了以用户为中心设计的重要性,并为未来开发用于评估和预防MS患者可扩展性跌倒的工具奠定了基础。未来的步骤包括了解跌倒风险算法的有效性以及评估该应用程序的临床效用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2eb9/8080269/0465ec2ced0d/humanfactors_v8i1e25604_fig1.jpg

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