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成为癌症幸存者:对话式健康研究实验。

Becoming a cancer survivor: An experiment in dialogical health research.

机构信息

University of Calgary, Canada.

University of Oslo, Norway.

出版信息

Health (London). 2023 Jan;27(1):78-93. doi: 10.1177/13634593211005178. Epub 2021 Mar 22.

DOI:10.1177/13634593211005178
PMID:33752444
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9743075/
Abstract

The article makes cancer survivorship the topic of an experiment in a form of writing we call . First, in the style of autoethnography, each author presents an account of her or his long-term survivorship of cancer and the issues that involves. Less conventionally, we then respond each to the other's story. The article seeks to contribute to an in-depth understanding of long-term cancer survivorship. More important, we offer it as an example of a form of writing rarely practiced in health research: speaking those who participate in research, rather than speaking those people. Among the multiple theoretical implications that could be explored, we consider Foucault's concept of subjectification. Our argument is that recognising the discursive formulation of the subject can and should be complemented by recognition of the local, immediate dialogical formulation of subjects. Rather than presenting research findings about cancer survivors, we offer a performative enactment of survivorship as an ongoing process of dialogical exchange. We show ourselves, responding to each other, in the process of becoming the cancer survivors we are as a result of those responses.

摘要

本文将癌症生存者作为一项实验的主题,以我们称之为自传体民族志的写作形式呈现。首先,每位作者以自传体民族志的风格呈现了自己长期的癌症生存经历及所涉及的问题。更非传统的是,我们随后对彼此的故事做出回应。本文旨在深入了解长期癌症生存者的情况。更重要的是,我们将其作为健康研究中很少实践的写作形式的一个范例:与参与研究的人对话,而不是对那些人说话。在可以探讨的多个理论意义中,我们考虑了福柯的主体化概念。我们的论点是,认识到主体的话语构成可以并且应该补充对主体的本地、即时对话构成的认识。我们不是呈现关于癌症幸存者的研究结果,而是提供生存的表现性实施,将其作为一个持续的对话交流过程。我们在相互回应的过程中展示自己,成为我们因这些回应而成为的癌症幸存者。

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本文引用的文献

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Implementing standardized cancer patient pathways (CPPs) - a qualitative study exploring the perspectives of health care professionals.实施标准化癌症患者路径(CPPs)-一项探索医疗保健专业人员观点的定性研究。
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"Losing My Self": A Poet's Ironies and a Daughter's Reflections on Dementia.《失去自我》:一位诗人的反讽与一位女儿对痴呆症的反思
Perspect Biol Med. 2017;60(4):549-568. doi: 10.1353/pbm.2017.0042.
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What Is Narrative Therapy and How Can It Help Health Humanities?
J Med Humanit. 2018 Dec;39(4):553-563. doi: 10.1007/s10912-018-9507-3.
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Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
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Breast-cancer-isation explored: Social experiences of gynaecological cancer in a Norwegian context.探索乳腺癌化:挪威背景下妇科癌症的社会经历
Sociol Health Illn. 2016 Nov;38(8):1258-1271. doi: 10.1111/1467-9566.12459. Epub 2016 Jul 27.
6
Absent organs--present selves: exploring embodiment and gender identity in young Norwegian women's accounts of hysterectomy.缺失的器官——存在的自我:探索年轻挪威女性子宫切除术叙述中的身体体现和性别认同。
Int J Qual Stud Health Well-being. 2015 Apr 30;10:26720. doi: 10.3402/qhw.v10.26720. eCollection 2015.