Centre of Social Medicine and Community Health, School of Social Sciences, Jawaharlal Nehru University, New Delhi, India.
Support Care Cancer. 2021 Oct;29(10):5839-5846. doi: 10.1007/s00520-021-06155-3. Epub 2021 Mar 22.
In the Three-year Report of the Population-Based Cancer Registries: 2012-2014 published by the Indian Council of Medical Research (ICMR 2016) [11], the incidence of nasopharyngeal carcinoma (NPC) in Nagaland has been ranked as the highest in the country and the second-highest globally next to China. With the paucity of literature and very few studies done on the high incidence of NPC among the Nagas in Nagaland, the present study was undertaken to understand and examine the experiences and perceptions of patients diagnosed with NPC and efforts were made to draw on their experiences with cancer care treatment through the thematic analysis of the ten in-depth interviews conducted. The patient's experiences with anxiety, fear, and distress due to NPC, its impact on the reconstruction of self, the coping mechanisms they develop in the form of resilience, personal attributes of hope and optimism, and the impact of religion and prayers in helping them deal with their disease are discussed in the paper.
在印度医学研究理事会(ICMR 2016)发布的《基于人群的癌症登记处三年报告:2012-2014》[11]中,纳加兰邦的鼻咽癌(NPC)发病率在全国排名最高,全球排名仅次于中国。由于纳加兰邦的 Nagas 中 NPC 的发病率很高,文献很少,研究也很少,因此进行了本研究,以了解和检查被诊断患有 NPC 的患者的经验和看法,并努力通过对进行的十次深入访谈的主题分析来借鉴他们在癌症治疗方面的经验。本文讨论了 NPC 引起的患者的焦虑、恐惧和痛苦、对自我重建的影响、他们以韧性的形式发展的应对机制、希望和乐观的个人特质,以及宗教和祈祷对帮助他们应对疾病的影响。