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超越癌症:对那加兰邦鼻咽癌患者叙事的反思。

Beyond cancer: a reflection on the narratives of nasopharyngeal carcinoma patients in Nagaland.

机构信息

Centre of Social Medicine and Community Health, School of Social Sciences, Jawaharlal Nehru University, New Delhi, India.

出版信息

Support Care Cancer. 2021 Oct;29(10):5839-5846. doi: 10.1007/s00520-021-06155-3. Epub 2021 Mar 22.

DOI:10.1007/s00520-021-06155-3
PMID:33754197
Abstract

In the Three-year Report of the Population-Based Cancer Registries: 2012-2014 published by the Indian Council of Medical Research (ICMR 2016) [11], the incidence of nasopharyngeal carcinoma (NPC) in Nagaland has been ranked as the highest in the country and the second-highest globally next to China. With the paucity of literature and very few studies done on the high incidence of NPC among the Nagas in Nagaland, the present study was undertaken to understand and examine the experiences and perceptions of patients diagnosed with NPC and efforts were made to draw on their experiences with cancer care treatment through the thematic analysis of the ten in-depth interviews conducted. The patient's experiences with anxiety, fear, and distress due to NPC, its impact on the reconstruction of self, the coping mechanisms they develop in the form of resilience, personal attributes of hope and optimism, and the impact of religion and prayers in helping them deal with their disease are discussed in the paper.

摘要

在印度医学研究理事会(ICMR 2016)发布的《基于人群的癌症登记处三年报告:2012-2014》[11]中,纳加兰邦的鼻咽癌(NPC)发病率在全国排名最高,全球排名仅次于中国。由于纳加兰邦的 Nagas 中 NPC 的发病率很高,文献很少,研究也很少,因此进行了本研究,以了解和检查被诊断患有 NPC 的患者的经验和看法,并努力通过对进行的十次深入访谈的主题分析来借鉴他们在癌症治疗方面的经验。本文讨论了 NPC 引起的患者的焦虑、恐惧和痛苦、对自我重建的影响、他们以韧性的形式发展的应对机制、希望和乐观的个人特质,以及宗教和祈祷对帮助他们应对疾病的影响。

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Beyond cancer: a reflection on the narratives of nasopharyngeal carcinoma patients in Nagaland.超越癌症:对那加兰邦鼻咽癌患者叙事的反思。
Support Care Cancer. 2021 Oct;29(10):5839-5846. doi: 10.1007/s00520-021-06155-3. Epub 2021 Mar 22.
2
Genetic Polymorphisms Along with Dietary and Environmental Factors Enhance the Susceptibility to Nasopharyngeal Carcinoma in Nagaland of Northeast India.遗传多态性以及饮食和环境因素增强了印度东北部那加兰邦人群患鼻咽癌的易感性。
Biochem Genet. 2020 Aug;58(4):533-550. doi: 10.1007/s10528-020-09954-1. Epub 2020 Jun 18.
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Higher incidence of nasopharyngeal carcinoma in some regions in the world confers for interplay between genetic factors and external stimuli.世界上某些地区鼻咽癌发病率较高,这表明遗传因素与外部刺激之间存在相互作用。
Drug Discov Ther. 2017;11(4):170-180. doi: 10.5582/ddt.2017.01030.
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Nasopharyngeal carcinoma in the Northeastern states of India.印度东北部各邦的鼻咽癌
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Cancer. 2017 Sep 15;123(18):3540-3549. doi: 10.1002/cncr.30775. Epub 2017 May 10.
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Effect of prior cancer on trial eligibility and treatment outcomes in nasopharyngeal carcinoma: Implications for clinical trial accrual.先前癌症对鼻咽癌临床试验入选和治疗结果的影响:对临床试验入组的影响。
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Oral Oncol. 2019 Jan;88:102-108. doi: 10.1016/j.oraloncology.2018.11.025. Epub 2018 Nov 23.

引用本文的文献

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The Evaluation of the Adjunctive Therapeutic Value of Mindfulness-Based Stress Reduction Therapy for Patients With Nasopharyngeal Carcinoma Induced Moderate Depression.基于正念减压疗法对鼻咽癌所致中度抑郁患者辅助治疗价值的评估
Actas Esp Psiquiatr. 2025 May;53(3):516-525. doi: 10.62641/aep.v53i3.1749.

本文引用的文献

1
Epidemiology and outcomes of nasopharyngeal carcinoma: Experience from a regional cancer center in Southern India.鼻咽癌的流行病学与治疗结果:来自印度南部一家地区癌症中心的经验
South Asian J Cancer. 2017 Jul-Sep;6(3):122-124. doi: 10.4103/2278-330X.214578.
2
Resilience among patients across the cancer continuum: diverse perspectives.癌症全程患者的复原力:多元视角
Clin J Oncol Nurs. 2014 Feb;18(1):93-101. doi: 10.1188/14.CJON.93-101.
3
A model linking uncertainty, post-traumatic stress, and health behaviors in childhood cancer survivors.
一个将儿童癌症幸存者的不确定性、创伤后应激和健康行为联系起来的模型。
Oncol Nurs Forum. 2009 Jan;36(1):E20-30. doi: 10.1188/09.ONF.E20-E30.
4
The benefits of prayer on mood and well-being of breast cancer survivors.祈祷对乳腺癌幸存者情绪和幸福感的益处。
Support Care Cancer. 2009 Mar;17(3):295-306. doi: 10.1007/s00520-008-0482-5. Epub 2008 Jul 17.
5
Uncertainty in adolescents and young adults with cancer.患有癌症的青少年和青年中的不确定性。
Oncol Nurs Forum. 2007 May;34(3):681-8. doi: 10.1188/07.ONF.681-688.
6
Introduction: resilience of cancer survivors across the lifespan.引言:癌症幸存者在整个生命周期中的复原力。
Cancer. 2005 Dec 1;104(11 Suppl):2543-8. doi: 10.1002/cncr.21487.
7
Serum EBV DNA as a biomarker in primary nasopharyngeal carcinoma of Indian origin.血清EBV DNA作为印度裔原发性鼻咽癌的生物标志物。
Jpn J Clin Oncol. 2004 Jun;34(6):307-11. doi: 10.1093/jjco/hyh055.
8
Prayer for health concerns: results of a national survey on prevalence and patterns of use.针对健康问题的祈祷:一项关于使用 prevalence 和模式的全国性调查结果 (注:“prevalence”在这里结合语境推测可能是“流行程度”之类的意思,但按要求不添加解释,直接保留英文)
Arch Intern Med. 2004 Apr 26;164(8):858-62. doi: 10.1001/archinte.164.8.858.