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本文引用的文献

1
Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.关于公众参与和参与数据密集型健康研究的共识声明。
Int J Popul Data Sci. 2019 Feb 12;4(1):586. doi: 10.23889/ijpds.v4i1.586.
2
Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation.患者及公众参与姑息治疗研究：哪些措施有效，原因何在？一项定性评估。
Palliat Med. 2021 Jan;35(1):151-160. doi: 10.1177/0269216320956819. Epub 2020 Sep 11.
3
Realist evaluation of public engagement and involvement in data-intensive health research.对公众参与数据密集型健康研究的现实主义评价。
Res Involv Engagem. 2020 Jun 29;6:37. doi: 10.1186/s40900-020-00215-4. eCollection 2020.
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Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis.患者和公众参与对临床试验入组和保留的影响：系统评价和荟萃分析。
BMJ. 2018 Nov 28;363:k4738. doi: 10.1136/bmj.k4738.
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Delivering care to those in need: Improving palliative care using linked data.为有需要的人提供护理：利用关联数据改善姑息治疗。
Palliat Med. 2017 Jun;31(6):489-491. doi: 10.1177/0269216317704629.
6
Making sense of big data in health research: Towards an EU action plan.理解健康研究中的大数据：迈向欧盟行动计划。
Genome Med. 2016 Jun 23;8(1):71. doi: 10.1186/s13073-016-0323-y.
7
Using routine data to improve palliative and end of life care.利用常规数据改善姑息治疗和临终关怀。
BMJ Support Palliat Care. 2016 Sep;6(3):257-62. doi: 10.1136/bmjspcare-2015-000994. Epub 2016 Feb 28.
8
Mapping the impact of patient and public involvement on health and social care research: a systematic review.探究患者及公众参与对健康和社会照护研究的影响：一项系统综述
Health Expect. 2014 Oct;17(5):637-50. doi: 10.1111/j.1369-7625.2012.00795.x. Epub 2012 Jul 19.
9
Health researchers' attitudes towards public involvement in health research.健康研究人员对公众参与健康研究的态度。
Health Expect. 2009 Jun;12(2):209-20. doi: 10.1111/j.1369-7625.2009.00532.x. Epub 2009 Apr 22.

Opportunities for public involvement in big data research in palliative and end-of-life care.

作者信息

Johnson Halle, Davies Joanna M, Leniz Javiera, Chukwusa Emeka, Markham Sarah, Sleeman Katherine E

机构信息

Cicely Saunders Institute, King's College London, London, UK.

Patient and Public Involvement Contributor, Cicely Saunders Institute, King's College London, London, UK.

出版信息

Palliat Med. 2021 Oct;35(9):1724-1726. doi: 10.1177/02692163211002101. Epub 2021 Mar 24.

DOI:10.1177/02692163211002101
PMID:33761778
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8531872/
Abstract
摘要