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行清洁间歇性自家导尿的时间对患者依从性和生活质量的影响及其决定因素:一项前瞻性观察性研究。

Determinants and impact of the time to perform clean intermittent self-catheterization on patient adherence and quality of life: A prospective observational study.

机构信息

Sorbonne Université, GRC 01, GREEN Groupe de Recherche Clinique en Neuro-Urologie, AP-HP, Hôpital Tenon, Paris, France.

出版信息

Neurourol Urodyn. 2021 Apr;40(4):1027-1034. doi: 10.1002/nau.24662. Epub 2021 Mar 26.

Abstract

AIMS

To measure the time required to perform clean intermittent self-catheterization (CISC) in daily life and to assess its impact on adherence and quality of life.

METHODS

Patients performing CISC for more than 1 month were invited to participate. At home, patients were asked to complete a 1-day diary to assess the specific duration of the CISC (time from when the equipment and environment are brought together to perform CISC) and the next day to complete a second diary for the total duration of the CISC (starting when the patient intent to self-catheterize to the return to the initial activity, including the displacement, and gathering the required device). Adherence, difficulties with CISC, and quality of life were measured with validated questionnaires: Intermittent Catheterization Satisfaction Questionnaire, Intermittent Catheterization Difficulty Questionnaire, Intermittent Catheterization Adherence Scale, and SF Qualiveen Questionnaire.

RESULTS

Thirty-six patients agreed to participate but only 25 patients completed the entire protocol. The participants performed CISC for an average of 7 years. The median specific duration of CISC was 2 min and 23 s (ranging from 47'' to 11'50''). The median total duration of CISC was 3 min and 40 s (1'35''; 18'47''). No significant correlation was found between the duration of CISC and patient characteristics, adherence, difficulty to self-catheterize, or quality of life.

CONCLUSION

The time to perform CISC was brief, and less than 2-3 min on average. The impact on adherence and quality of life should be assessed in a larger cohort.

摘要

目的

测量日常生活中进行清洁间歇性自我导尿(CISC)所需的时间,并评估其对依从性和生活质量的影响。

方法

邀请正在进行 CISC 超过 1 个月的患者参与。在家中,患者被要求填写 1 天的日记,以评估 CISC 的具体持续时间(从准备设备和环境开始进行 CISC 到完成导尿的时间)和第二天完成 CISC 的总持续时间(从患者开始自我导尿到返回初始活动的时间,包括移位和收集所需设备的时间)的第二份日记。使用经过验证的问卷评估依从性、CISC 困难和生活质量:间歇性导尿满意度问卷、间歇性导尿困难问卷、间歇性导尿依从性量表和 SF Qualiveen 问卷。

结果

36 名患者同意参与,但只有 25 名患者完成了整个方案。参与者进行 CISC 的平均时间为 7 年。CISC 的特定持续时间中位数为 2 分钟 23 秒(范围为 47'' 到 11'50'')。CISC 的总持续时间中位数为 3 分钟 40 秒(1'35'';18'47'')。CISC 持续时间与患者特征、依从性、自我导尿困难或生活质量之间未发现显著相关性。

结论

进行 CISC 的时间很短,平均不到 2-3 分钟。应在更大的队列中评估对依从性和生活质量的影响。

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