Department of Health Care, AP University College, Antwerp, Belgium; Department of Rehabilitation Medicine, CAPHRI, Maastricht University, Maastricht, the Netherlands; MOVANT, Department of Rehabilitation Sciences and Physiotherapy, University of Antwerp, Antwerp, Belgium; Pain in Motion International Research Group, www.paininmotion.be, Belgium.
Department of Rehabilitation Medicine, CAPHRI, Maastricht University, Maastricht, the Netherlands; Adelante, Centre of Expertise in Rehabilitation and Audiology, Hoensbroek, the Netherlands.
J Psychosom Res. 2021 May;144:110417. doi: 10.1016/j.jpsychores.2021.110417. Epub 2021 Mar 10.
To explore the ability of a self-report activity diary to measure the physical activity level (PAL) in female patients with chronic fatigue syndrome (CFS) and whether illness-related complaints, health-related quality of life domains (HRQOL) or demographic factors are associated with discrepancies between self-reported and objectively measured PAL.
Sixty-six patients with CFS, recruited from the chronic fatigue clinic of a university hospital, and twenty matched healthy controls wore an accelerometer (Actical) for six consecutive days and registered their activities in an activity diary in the same period. Participants' demographic data was collected and all subjects completed the CFS Symptom List (illness-related complaints) daily and Short-Form-36 (HRQOL domains) during the first and second appointment.
A significant, but weak association between the activity diary and Actical was present in patients with CFS (r = 0.376 and r = 0.352; p < 0.001) and a moderately strong association in healthy controls (r = 0.605; and r = 0.644; p < 0.001) between week and weekend days, respectively. A linear mixed model identified a negative association between age and the discrepancy between the self-reported and objective measure of PA in both patients with CFS and healthy controls.
The activity diary showed limited ability to register the PAL in female patients with CFS. The discrepancy between measures was not explained by illness-related complaints, HRQOL domains or demographic factors. The activity diary cannot replace objective activity monitoring measured with an accelerometer, but may provide additional information about the perceived activity.
探讨活动日记能否测量慢性疲劳综合征（CFS）女性患者的体力活动水平（PAL），以及疾病相关症状、健康相关生活质量（HRQOL）领域或人口统计学因素是否与自我报告和客观测量的 PAL 之间的差异有关。
从大学医院的慢性疲劳诊所招募了 66 名 CFS 患者和 20 名匹配的健康对照者，他们在连续 6 天佩戴加速度计（Actical），并在同一时期的活动日记中记录自己的活动。收集参与者的人口统计学数据，所有受试者在第一次和第二次就诊期间每天完成慢性疲劳综合征症状清单（疾病相关症状），并完成简短形式-36（HRQOL 领域）。
CFS 患者的活动日记和 Actical 之间存在显著但较弱的关联（r=0.376 和 r=0.352；p<0.001），健康对照组之间的关联程度中等较强（r=0.605 和 r=0.644；p<0.001），分别为周和周末。线性混合模型确定了年龄与 CFS 患者和健康对照组自我报告和客观测量 PA 之间差异的负相关。
活动日记在测量 CFS 女性患者的 PAL 方面能力有限。测量之间的差异不能用疾病相关症状、HRQOL 领域或人口统计学因素来解释。活动日记不能替代使用加速度计进行的客观活动监测，但可以提供关于感知活动的额外信息。
