Institute of Health Visiting c/o Royal Society for Public Health, London, UK.
Cornwall Down Syndrome Support Group, Cornwall, UK.
Prim Health Care Res Dev. 2021 Mar 29;22:e10. doi: 10.1017/S1463423620000651.
To explore the lived experience of delivering or receiving news about an unborn or newborn child having a condition associated with a learning disability in order to inform the development of a training intervention for healthcare professionals. We refer to this news as different news.
How healthcare professionals deliver different news to parents affects the way they adjust to the situation, the wellbeing of their child and their ongoing engagement with services. This is the first study that examined the lived experience of delivering and receiving different news, in order to inform the development of training for healthcare professionals using the Theoretical Domains Framework version 2.
We conducted qualitative interviews with a purposive sample of 9 different parents with the lived experience of receiving different news and 12 healthcare professionals who delivered different news. It was through these descriptions of the lived experience that barriers and facilitators to effectively delivering different news were identified to inform the training programme. Data analysis was guided by Theoretical Domains Framework version 2 to identify these barriers and facilitators as well as the content of a training intervention.
Receiving different news had a significant impact on parents' emotional and mental wellbeing. They remembered how professionals described their child, the quality of care and emotional support they received. The process had a significant impact on the parent-child relationship and the relationship between the family and healthcare professionals.Delivering different news was challenging for some healthcare professionals due to lack of training. Future training informed by parents' experiences should equip professionals to demonstrate empathy, compassion, provide a balanced description of conditions and make referrals for further care and support. This can minimise the negative psychological impact of the news, maximise psychological wellbeing of families and reduce the burden on primary care services.
探索传递或接收有关胎儿或新生儿患有与学习障碍相关疾病的消息的体验，以便为医疗保健专业人员的培训干预措施的开发提供信息。我们将这种消息称为不同的消息。
医疗保健专业人员如何向父母传递不同的消息会影响他们适应情况的方式、孩子的健康状况以及他们与服务的持续互动。这是第一项研究，旨在检查传递和接收不同消息的亲身体验，以便使用理论领域框架版本 2 为医疗保健专业人员的培训开发提供信息。
我们对有接收不同消息经历的 9 位不同父母和 12 位传递不同消息的医疗保健专业人员进行了目的抽样的定性访谈。正是通过这些亲身体验的描述，确定了有效传递不同消息的障碍和促进因素，以为培训计划提供信息。数据分析受理论领域框架版本 2 的指导，以确定这些障碍和促进因素以及培训干预的内容。
接收不同的消息对父母的情绪和心理健康产生了重大影响。他们记得专业人员如何描述他们的孩子、他们所接受的护理质量和情感支持。这一过程对亲子关系以及家庭和医疗保健专业人员之间的关系产生了重大影响。对于一些医疗保健专业人员来说，由于缺乏培训，传递不同的消息具有挑战性。未来的培训应根据父母的经验提供信息，使专业人员能够表现出同理心、同情心、提供条件的平衡描述，并为进一步的护理和支持提供转介。这可以最大限度地减少消息的负面心理影响，最大限度地提高家庭的心理健康，并减轻初级保健服务的负担。
