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在“延缓死亡的时代”中实施预先护理计划——香港超过 4 年的经验。

Implementing Advance Care Planning in 'The Age of Deferred Death'- the Hong Kong Experience over 4 Years.

机构信息

Prof Jean Woo, Department of Medicine and Therapeutics, Prince of Wales Hospital, Shatin, N.T. Hong Kong, Tel: 852-3505-3493, Fax: 852-3505-3852, Email:

出版信息

J Nutr Health Aging. 2021;25(4):584-589. doi: 10.1007/s12603-021-1594-6.

DOI:10.1007/s12603-021-1594-6
PMID:33786573
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7838233/
Abstract

OBJECTIVES

To plan, implement and evaluate a series of initiatives to improve patient centred quality of end of life care through raising public awareness, promoting the concept that all health and social care professionals should be engaged in this practice, and carrying out pilot of community care models.

DESIGN

Pilot studies of community models of care, training programs for health and social care professionals, public education programmes.

SETTING

Selected hospitals, residential care homes for the elderly, and community centres in Hong Kong.

PARTICIPANTS

Patients and their families at the end of life stage.

MEASUREMENTS

Combination of quantitative and qualitative studies according to different components of the initiative.

RESULTS

Effective training for professional staff occurred using training videos, role play, rather than lectures, and when concepts are integrated into daily practice and quality assurance programmes. Members of the public welcomed end of life care discussions and the implementation of advance care planning. The pilot community care program was found to reduce anxiety, depression, physical symptoms, improve communication within the family as well as promoting a feeling of peace among recipients of the service. It also reduced care giver strain and anxiety, as well as hospital visits and duration of stay. Similar findings were also observed among recipients of care in the residential care setting.

CONCLUSION

A sustainable model would require uptake by policy makers and chief executives of Social Welfare and Health Bureaus, supported by amendments of relevant legal ordinances, which is in progress after public consultation.

摘要

目的

通过提高公众意识、倡导所有卫生和社会保健专业人员都应参与这一实践的理念,并开展社区护理模式试点,规划、实施和评估一系列举措,以提高以患者为中心的临终关怀质量。

设计

社区护理模式的试点研究、卫生和社会保健专业人员培训计划、公众教育计划。

地点

香港的选定医院、老年人居住护理院和社区中心。

参与者

临终阶段的患者及其家属。

测量

根据倡议的不同组成部分,结合定量和定性研究。

结果

使用培训视频、角色扮演而不是讲座对专业人员进行了有效的培训,当概念融入日常实践和质量保证计划中时,效果更为显著。公众欢迎进行临终关怀讨论和实施预先护理计划。试点社区护理计划被发现可以减轻焦虑、抑郁、身体症状,改善家庭内的沟通,以及为服务接受者带来平静感。它还减轻了护理人员的压力和焦虑,以及减少了住院次数和住院时间。在居住护理环境中接受护理的人也观察到了类似的发现。

结论

可持续模式需要政策制定者和社会福利和卫生局的首席执行官的采纳,并得到相关法律法规修正案的支持,这在公众咨询后正在进行中。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d833/7838233/12fbba7bef60/12603_2021_1594_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d833/7838233/758e8c6f010b/12603_2021_1594_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d833/7838233/12fbba7bef60/12603_2021_1594_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d833/7838233/758e8c6f010b/12603_2021_1594_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d833/7838233/12fbba7bef60/12603_2021_1594_Fig2_HTML.jpg

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"Advance" Care Planning Reenvisioned.重新构想的“预立”医疗计划。
J Am Geriatr Soc. 2021 Feb;69(2):330-332. doi: 10.1111/jgs.16903. Epub 2020 Nov 9.
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Supportive and palliative care in the age of deferred death: primary care's central role.延缓死亡时代的支持性与姑息治疗:初级保健的核心作用
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Int J Environ Res Public Health. 2020 Jul 16;17(14):5130. doi: 10.3390/ijerph17145130.
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BMJ. 2020 May 18;369:m1927. doi: 10.1136/bmj.m1927.
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Diagnosing Gaps in the Development of Palliative and End-of-Life Care: A Qualitative Exploratory Study.诊断姑息治疗和临终关怀发展中的差距:一项定性探索性研究。
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Anticipatory prescribing of injectable medications for adults at the end of life in the community: A systematic literature review and narrative synthesis.生命终末期社区成人注射药物的预期性处方:系统文献回顾和叙述性综合。
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