Department of Experimental Clinical and Health Psychology, Faculty of Psychology and Educational Sciences, 26656Ghent University, Ghent, Belgium.
J Pediatr Oncol Nurs. 2021 May-Jun;38(3):166-175. doi: 10.1177/1043454221992303. Epub 2021 Apr 1.
: Pediatric cancer is a severe life-threatening disease that poses significant challenges to the life of the siblings. Based on the social ecology model, the current study is aimed at exploring the association between intrafamilial (family functioning, family support) and contextual (network support) resources, and the individual adjustment of siblings facing cancer in their brother/sister. : Participants were 81 siblings of children with leukemia or non-Hodgkin lymphoma. The mean siblings' age was 10.32 years. Siblings completed the Family Environment Scale, the Social Support Questionnaire for Children, the Situation-Specific Emotional Reactions Questionnaire, and the Pediatric Quality of Life Inventory. Data were analyzed using a multi-level approach. : Family functioning, family support, and network support proved to be related to siblings' cancer-related emotional reactions post-diagnosis. In addition, the present study suggests taking into account the gender of the ill child and the age of the siblings. : Our findings led to the conclusion that resources at both the intrafamilial level and the contextual level are important for explaining sibling adjustment post-diagnosis. Interventions targeting the sibling, the family, and the external network are warranted to enhance sibling adjustment.
儿科癌症是一种严重的危及生命的疾病，对患儿兄弟姐妹的生活构成重大挑战。基于社会生态学模型，本研究旨在探讨家庭内（家庭功能、家庭支持）和情境（网络支持）资源与癌症患儿兄弟姐妹个体适应之间的关系。研究对象为 81 名白血病或非霍奇金淋巴瘤患儿的兄弟姐妹。兄弟姐妹的平均年龄为 10.32 岁。兄弟姐妹完成了家庭环境量表、儿童社会支持问卷、情境特定情绪反应问卷和儿科生活质量量表。使用多层次方法分析数据。研究结果表明，家庭功能、家庭支持和网络支持与诊断后兄弟姐妹的癌症相关情绪反应有关。此外，本研究还表明需要考虑患病儿童的性别和兄弟姐妹的年龄。本研究的结果表明，家庭内和情境层面的资源对于解释诊断后兄弟姐妹的适应情况非常重要。有必要针对兄弟姐妹、家庭和外部网络进行干预，以增强兄弟姐妹的适应能力。
