Jamie N. Pearson, North Carolina State University; and.
Hedda Meadan, University of Illinois at Urbana Champaign.
Intellect Dev Disabil. 2021 Apr 1;59(2):155-171. doi: 10.1352/1934-9556-59.2.155.
Children with autism and their families often face challenges accessing early intervention and related services. African American children face additional challenges due to disparities in diagnoses and access to services. These disparities present a great need for parent advocacy to combat culturally insensitive service delivery and strained parent-professional partnerships. In this sequential mixed methods study, we piloted a 6-week parent-training intervention (FACES) among African American parents of children with autism and evaluated participants' empowerment, advocacy, and partnerships pre- and postintervention. Results indicated that parents' advocacy, sense of empowerment, and community support were strengthened, following the FACES program. Participants also described the FACES intervention as socially valid. Implications for research and practice are discussed.
自闭症儿童及其家庭在获得早期干预和相关服务方面常常面临挑战。由于在诊断和获得服务方面存在差异，非裔美国儿童面临着额外的挑战。这些差异迫切需要家长倡导，以应对服务提供中存在的文化不敏感问题，以及紧张的家长与专业人员的合作关系。在这项顺序混合方法研究中，我们在自闭症儿童的非裔美国家长中试行一项为期 6 周的家长培训干预措施（FACES），并在干预前后评估了参与者的赋权、倡导和伙伴关系。结果表明，FACES 计划实施后，家长的倡导、赋权感和社区支持得到了加强。参与者还将 FACES 干预描述为具有社会有效性。讨论了对研究和实践的影响。
