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一项针对黑人父母的具有文化根基的自闭症家长培训计划。

A culturally grounded autism parent training program with Black parents.

机构信息

The Color of Autism Foundation, USA.

University of Utah, USA.

出版信息

Autism. 2022 Apr;26(3):716-726. doi: 10.1177/13623613211073373. Epub 2022 Mar 2.

DOI:10.1177/13623613211073373
PMID:35232271
Abstract

Parent training programs have been well-studied in Autism Spectrum Disorders and shown to increase a parent's feeling of empowerment, advocacy skills, and treatment enrollment for their child. The majority of parent training interventions have been developed without considering the unique needs of under-represented communities, such as the Black community. Black children with autism are not only misdiagnosed or not diagnosed at all, but are not accessing services equally compared to their White peers. There is an urgent need for culturally adapted interventions in order to decrease the disparity gap. The Color of Autism Foundation developed and ran a parent training program for Black parents of children with autism. The program was grounded in two key features: (1) creating a circle of support for parents to connect and heal from ongoing and historical racial trauma and (2) using parents of Black children with autism as the main facilitators. We believe this increased parent's ability to engage in the educational aspects of the training. Overall, parents reported high levels of satisfaction with the training were highly engaged (attended an average of five of six sessions) and reported high levels of empowerment. Parents also reported continued mistrust in the medical and research community and a need for more Black providers. Further work should examine the relationship of the parent and provider in autism treatment and study the impact of circles of healing for Black families.

摘要

家长培训计划在自闭症谱系障碍中得到了充分研究,已被证明可以增强家长的授权感、倡导技能,并为其孩子接受治疗。大多数家长培训干预措施都是在没有考虑代表性不足的社区(如黑人社区)的独特需求的情况下制定的。自闭症黑人儿童不仅被误诊或根本没有被诊断出来,而且与他们的白人同龄人相比,他们也无法平等地获得服务。迫切需要进行文化适应干预,以缩小差距。自闭症的颜色基金会为自闭症儿童的黑人父母开发并运行了一个家长培训计划。该计划基于两个关键特征:(1)为父母创造一个支持圈,以从持续和历史的种族创伤中恢复和疗愈;(2)使用自闭症黑人儿童的父母作为主要的推动者。我们相信这增加了家长参与培训教育方面的能力。总体而言,家长报告对培训的满意度很高,他们非常投入(平均参加了六节课程中的五节),并报告了高度的授权感。家长还报告说,他们仍然对医疗和研究界缺乏信任,需要更多的黑人服务提供者。进一步的工作应该研究自闭症治疗中父母和提供者之间的关系,并研究黑人家庭的疗愈圈的影响。

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