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社区中与痴呆症患者和护理伙伴一起进行音乐创作——“我离开时感觉世界之巅”。

Music-making in the community with people living with dementia and care-partners - 'I'm leaving feeling on top of the world'.

机构信息

Salford Institute for Dementia and Ageing, School of Health & Society, University of Salford, Manchester, UK.

出版信息

Health Soc Care Community. 2022 Jan;30(1):114-123. doi: 10.1111/hsc.13378. Epub 2021 Apr 6.

Abstract

Evidence exists relating to music-based initiatives and positive health outcomes for people living with dementia who can access them. Yet, knowledge about the impact of 'music-making' on the well-being of community-dwelling people with dementia is limited. Much of the existing evidence about the benefits of music is focused on care home settings where initiatives can be readily applied as part of a weekly schedule of activities. Therefore, this initiative aimed to provide opportunities to participate in music-making, to increase social interaction and ultimately well-being in a community environment. Ten music-making session were scheduled for community-dwelling people living with dementia and care-partners, once a month between September 2019 and March 2020. Three sessions did not take place due to Covid19. Eighteen participants consented to take part including seven people living with dementia, five care-partners and six former care-partners. Baseline semi-structured interviews explored the lived experience of music and expectations of the upcoming music-making cafes. Self-report questionnaires captured 'in the moment' experiences of each music-making cafe. Follow-up semi-structured interviews explored the impact of music-making on participants' self-reported well-being. Interviews were transcribed verbatim and analysed thematically. The findings demonstrate that participating in the music-making café benefitted the self-reported well-being of participants in three ways: first, a sense of camaraderie that enabled the facilitation of connections with others; second, creating opportunities to 'level the playing field' by always assuming a person's strengths and abilities; and third, group participation in music-making meets a need for meaningful musical experiences. We conclude that participating in music-making is a powerful medium to promote well-being for community-dwelling people living with dementia and care-partners.

摘要

有证据表明,对于能够接触到音乐活动的痴呆症患者,基于音乐的干预措施可以带来积极的健康结果。然而,对于“音乐创作”对社区居住的痴呆症患者的幸福感的影响,人们的了解是有限的。现有的大部分关于音乐益处的证据都集中在养老院环境中,在那里,这些干预措施可以作为每周活动计划的一部分,很容易得到实施。因此,本倡议旨在为居住在社区中的痴呆症患者和护理人员提供参与音乐创作的机会,以增加社交互动,最终提高他们的幸福感。2019 年 9 月至 2020 年 3 月期间,每月安排一次音乐创作活动,共 10 次,供社区居住的痴呆症患者和护理人员参加。由于新冠疫情,有三次活动未能进行。共有 18 名参与者同意参加,包括 7 名痴呆症患者、5 名护理人员和 6 名前护理人员。基线半结构化访谈探讨了音乐的生活体验以及对即将到来的音乐创作咖啡馆的期望。自我报告问卷捕捉了每次音乐创作咖啡馆的“当下”体验。后续半结构化访谈探讨了音乐创作对参与者自我报告的幸福感的影响。访谈内容逐字记录并进行了主题分析。研究结果表明,参加音乐创作咖啡馆从三个方面使参与者的自我报告幸福感受益:第一,一种同志情谊,使他们能够与他人建立联系;第二,通过始终假设一个人的优势和能力,创造“平等竞争”的机会;第三,小组参与音乐创作满足了他们对有意义的音乐体验的需求。我们的结论是,参与音乐创作是促进社区居住的痴呆症患者和护理人员幸福感的有力媒介。

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