The Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
J Parkinsons Dis. 2021;11(3):905-908. doi: 10.3233/JPD-212593.
The current base of knowledge around Parkinson's disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The Michael J. Fox Foundation has defined four major areas of action: 1) identifying barriers and solutions to research participation; 2) funding inclusive research with greater participant diversity; 3) building a clinician/researcher workforce committed to health equity; and 4) supporting a more holistic understanding of PD. While factors driving disparities, including broader societal challenges, are complex, it is imperative that the PD research, care, and patient communities move in a decisive and coordinated fashion to identify and implement strategies that advance treatments for everyone with PD and eliminate care inequities.
目前帕金森病相关知识基础是与一个不具有疾病多样性特征的参与者群体合作建立的。这种研究中代表性不足的情况导致了对疾病认识不完整和护理上的差异。迈克尔·J·福克斯基金会确定了四大行动领域:1)确定参与研究的障碍和解决方案;2)资助具有更大参与者多样性的包容性研究;3)建立致力于健康公平的临床医生/研究人员队伍;4)支持对 PD 的更全面理解。虽然推动差异的因素,包括更广泛的社会挑战,很复杂,但 PD 研究、护理和患者社区必须果断而协调地采取行动,确定和实施推进每个人的 PD 治疗并消除护理不平等的策略。