Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands.
Department of Neurology, Center of Expertise for Parkinson and Movement Disorders, Donders Institute for Brain, Cognition and Behavior, Radboud University Medical Center, Nijmegen, The Netherlands.
J Neurol. 2022 Nov;269(11):5963-5972. doi: 10.1007/s00415-022-11228-2. Epub 2022 Jul 14.
There is a growing recognition that sex characteristics and gender-related aspects can have a substantial impact on the health-related quality of life (HRQoL) of persons with Parkinson's disease (PD). Gender is a multidimensional construct, including dynamic social norms and relations that influence health and impact quality of life. Even when gender is investigated in the field of PD, it is frequently conceptualized as gender identity while other dimensions, such as roles or relations, are generally ignored. The aim of this study was to explore the impact of several gender dimensions on HRQoL among people with PD.
We performed a survey-based, cross-sectional study in the Netherlands to explore the impact of several gender dimensions, namely; gender identity, gender roles and gender relations on HRQoL (PDQ-39) of people with PD.
In our study population (N = 307), including 127 (41%) women, we did not observe an association between gender identity and overall HRQoL. In contrast, an androgynous gender role and higher engagement in household tasks were associated with better overall HRQoL among people with PD.
This study offers the first detailed description of the impact of different gender dimensions on the HRQoL of people with PD and highlights the need for more precise gender-measures to inform actionable gender-sensitive health interventions for people with PD.
越来越多的人认识到，性别特征和与性别相关的方面会对帕金森病（PD）患者的健康相关生活质量（HRQoL）产生重大影响。性别是一个多维的概念，包括影响健康和生活质量的动态社会规范和关系。即使在 PD 领域研究性别，也常常将其概念化为性别认同，而其他维度，如角色或关系，通常被忽视。本研究旨在探讨几个性别维度对 PD 患者 HRQoL 的影响。
我们在荷兰进行了一项基于调查的横断面研究，以探讨几个性别维度，即性别认同、性别角色和性别关系对 PD 患者 HRQoL（PDQ-39）的影响。
在我们的研究人群（N=307）中，包括 127 名（41%）女性，我们没有观察到性别认同与整体 HRQoL 之间存在关联。相比之下，中性化的性别角色和更多地参与家务劳动与 PD 患者的整体 HRQoL 更好相关。
这项研究首次详细描述了不同性别维度对 PD 患者 HRQoL 的影响，并强调需要更精确的性别衡量标准，以提供针对 PD 患者的可行的性别敏感健康干预措施。
