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阿根廷多发性硬化症患者人群的就业状况监测:发展中国家的特殊性。

Employment status monitoring in an Argentinian population of patients with multiple sclerosis: Particularities of a developing country.

机构信息

Ineba - Neurosciences Institute of Buenos Aires, Buenos Aires, Argentina.

Multiple Sclerosis Unit, Ramos Mejía Hospital, Buenos Aires, Argentina.

出版信息

Work. 2021;68(4):1121-1131. doi: 10.3233/WOR-213442.

Abstract

BACKGROUND

Multiple sclerosis (MS) is a neurological chronic disease that causes a number of physical, cognitive and emotional symptoms. The identification of these factors will allow mitigating unemployment and improve quality of life of patients. The Buffalo Vocational Monitoring Survey (BVMS) is a tool to characterize Work-Challenged patients.

OBJECTIVE

To describe and analyze BVMS data in people with multiple sclerosis (PwMS) from Argentina. To study the association with physical, cognitive and psychiatric morbidity in employed patients, comparing the performance of MS Work-Challenged and MS Work-Stable patients, with and without accommodations.

METHODS

119 MS patients were administered the Argentina adaptation of the BVMS, and completed measures of physical disability, fatigue, depression, cognitive processing speed, memory and verbal fluency.

RESULTS

65.54% of the patients were employed and 19.32% were unemployed, the remaining having roles of housewife, students and disability retirees. Within the employed subgroup, 60.26% were working as employees and 39.74% were self-employed. Cognitive and clinical variables differentiate patients with and without negative events and accommodations (p >  0.05).

CONCLUSIONS

This Spanish version BVMS is considered a new tool to monitor employment difficulties in Spanish-speaking MS patients. MS Work-Challenged had a higher depression, fatigue and worse performance in cognitive variables.

摘要

背景

多发性硬化症(MS)是一种神经系统慢性疾病,会导致多种身体、认知和情绪症状。识别这些因素将有助于减少患者的失业,并提高其生活质量。布法罗职业监测调查(BVMS)是一种用于描述工作有挑战的患者的工具。

目的

描述和分析来自阿根廷的多发性硬化症患者(PwMS)的 BVMS 数据。研究与就业患者的身体、认知和精神疾病之间的相关性,比较有和没有工作调整的 MS 工作有挑战患者和 MS 工作稳定患者的表现。

方法

对 119 名多发性硬化症患者进行了阿根廷版 BVMS 的评估,并完成了身体残疾、疲劳、抑郁、认知加工速度、记忆和言语流畅性的测量。

结果

65.54%的患者就业,19.32%的患者失业,其余的为家庭主妇、学生和残疾退休人员。在就业亚组中,60.26%的患者为雇员,39.74%的患者为个体经营者。认知和临床变量可以区分有和没有负面事件和工作调整的患者(p>0.05)。

结论

这种西班牙语版的 BVMS 被认为是一种监测西班牙语系多发性硬化症患者就业困难的新工具。MS 工作有挑战的患者抑郁、疲劳更严重,认知变量表现更差。

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