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痴呆症患者的权利及其意义。

The Rights of Persons With Dementia and Their Meanings.

机构信息

Department of Health Promotion, School of Public Health, Sackler Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel; Minerva Center for the Interdisciplinary Study of End of Life, Tel Aviv University, Tel Aviv, Israel; The Herczeg Institute on Aging, Tel Aviv University, Tel Aviv, Israel; Igor Orenstein Chair for the Study of Geriatrics, Tel Aviv University, Tel Aviv, Israel.

出版信息

J Am Med Dir Assoc. 2021 Jul;22(7):1381-1385. doi: 10.1016/j.jamda.2021.03.007. Epub 2021 Apr 15.

Abstract

Concern about the lack of human rights afforded to persons living with dementia has emerged in recent years. Although the literature addresses certain rights, it does not include a holistic framework of rights in terms of the lived experience of older persons with cognitive impairment. Inspired by the 20 rights advocated for children by physician-educator Janusz Korczak, this article analyzes his formulation of rights in the context of persons with dementia, linking them to the ethical principles of Beneficence, Autonomy, and Justice. The analysis thus provides a holistic framework for addressing the human rights of persons with dementia, and their meanings for the lived experiences of persons with dementia and their caregivers. It offers new insights into the philosophy and practice of care, with implications for dementia care research, public health policy, practice guidelines for health care professionals, and the instruction of family and other caregivers of persons with dementia.

摘要

近年来,人们对痴呆症患者享有人权的关注日益增加。尽管文献中提到了某些权利,但并没有从认知障碍老年人的生活体验的角度来构建一个全面的权利框架。受医生教育家扬努什·科尔恰克为儿童倡导的 20 项权利的启发,本文分析了他在痴呆症患者背景下的权利表述,将其与善行、自主和正义的伦理原则联系起来。因此,这种分析为解决痴呆症患者的人权问题提供了一个全面的框架,以及这些权利对痴呆症患者及其护理者的生活体验的意义。它为护理的哲学和实践提供了新的见解,对痴呆症护理研究、公共卫生政策、医疗保健专业人员的实践指南以及痴呆症患者的家庭和其他护理者的指导都具有重要意义。

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