中国恶性骨肿瘤披露的患者、家属、医生和护士的看法：一项定性研究。
The Perceptions of Patients, Families, Doctors, and Nurses Regarding Malignant Bone Tumor Disclosure in China: A Qualitative Study.
机构信息
School of Nursing, Army Medical University, Chongqing, Peoples Republic of China.
Orthopedics Department of Xinqiao Hospital, Army Medical University, Chongqing, Peoples Republic of China.
出版信息
J Transcult Nurs. 2021 Nov;32(6):740-748. doi: 10.1177/10436596211005532. Epub 2021 Apr 15.
INTRODUCTION
Withholding the malignant bone tumors disclosure from patients is common in China. The purpose of the study was to explore the perceptions of patients, families, doctors, and nurses regarding the disclosure of malignant bone tumors in China.
METHOD
Semistructured interviews were conducted with 25 cases, consisting of 69 participants (14 patients, 25 family members, 17 doctors, and 13 nurses), and the transcripts were analysed using Colaizzi's (1978) descriptive phenomenological analysis process.
RESULTS
Five themes were identified: (1) doctors preferred to inform the family members first, (2) family members' decisions depended on different situations, (3) the patients agreed that disclosure should be different for each person/personally, (4) care from nurses reduced the overreaction of patients, and (5) key points improve the informing quality.
DISCUSSION
Family participatory cancer disclosure and multidisciplinary teams could improve the quality of cancer disclosure. Culturally congruent health care and culturally sensitive interventions in cancer disclosure are suggested.
简介
在中国，对恶性骨肿瘤患者隐瞒病情是很常见的。本研究旨在探讨患者、家属、医生和护士对中国恶性骨肿瘤披露的看法。
方法
采用半结构式访谈法对 25 例患者（14 例患者、25 名家属、17 名医生和 13 名护士）进行访谈，采用 Colaizzi（1978）的描述现象学分析过程对转录本进行分析。
结果
确定了五个主题：（1）医生更愿意先告知家属；（2）家属的决定取决于不同的情况；（3）患者认为披露应因人而异/因人而异；（4）护士的关怀减轻了患者的过度反应；（5）要点提高了告知质量。
讨论
家庭参与式癌症披露和多学科团队可以提高癌症披露的质量。建议在癌症披露中采用文化上一致的医疗保健和文化敏感的干预措施。
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