Temraz Sally, Salim Hammoud Miza, Saleh Ahmad, Charafeddine Maya, Mukherji Deborah, Shamseddine Ali
Department of Internal Medicine, American University of Beirut Medical Center, Riad El Solh, Beirut, 1107 2020, Lebanon.
J Cancer Educ. 2019 Oct;34(5):874-881. doi: 10.1007/s13187-018-1389-6.
In Lebanon, cancer used to be regarded as a taboo and referred to as "the disease" and was rarely disclosed to patients. However, patients are now increasingly interested in knowing their cancer status but with varying degrees of information requested. The aim of this qualitative descriptive study was to explore the perceptions of cancer patients, their families, oncologists, and healthy individuals concerning the disclosure of cancer prognosis. In-depth interviews were conducted with 21 family members, 20 middle-aged cancer patients, 11 elderly cancer patients, 22 healthy individuals, and 6 oncologists at the American University of Beirut Medical Center. The interviews focused on the following: general perception of cancer in Lebanese society, type, and extent of information that should be disclosed, factors affecting patient autonomy, and elements contributing to the decisions taken by oncologists and patients. The oncologist's compassion and communication with patients affected their emotional status greatly, and some gaps in communication skills of oncologists were in need of standardized training courses to improve the process of cancer status disclosure. Also, patients had an increased preference towards the disclosure of cancer prognosis, and a desire to know the truth and this need increased as the patient progressed to a terminal state. Future work should be directed at addressing the needs of cancer patients through every disease stage. More research and further deliberation are needed to confirm the findings of this study since the Lebanese Code of Medical Practice does not protect the right of full disclosure.
在黎巴嫩,癌症曾被视为一种禁忌,被称作“那种疾病”,很少向患者透露。然而,现在患者越来越有兴趣了解自己的癌症状况,但对信息的需求程度各不相同。这项定性描述性研究的目的是探讨癌症患者、其家属、肿瘤学家和健康个体对癌症预后披露的看法。在美国贝鲁特美国大学医学中心,对21名家庭成员、20名中年癌症患者、11名老年癌症患者、22名健康个体和6名肿瘤学家进行了深入访谈。访谈集中在以下方面:黎巴嫩社会对癌症的总体看法、应披露的信息类型和程度、影响患者自主权的因素,以及促成肿瘤学家和患者所做决定的因素。肿瘤学家对患者的同情心和沟通极大地影响了他们的情绪状态,肿瘤学家的一些沟通技巧差距需要标准化培训课程来改善癌症状况披露过程。此外,患者对癌症预后披露的偏好增加,渴望了解真相,并且随着患者病情发展到晚期,这种需求也会增加。未来的工作应致力于在每个疾病阶段满足癌症患者的需求。由于黎巴嫩《医疗实践法典》不保护充分披露的权利,因此需要更多研究和进一步审议来证实本研究的结果。