Basch Corey H, Fera Joseph, Quinones Nasia
Department of Public Health, William Paterson University, University Hall 366, Wayne, NJ, 07470, USA.
Department of Mathematics, Lehman College, City University of New York, 250 Bedford Park Blvd W, The Bronx, NY, 10468, USA.
J Community Genet. 2021 Jul;12(3):489-492. doi: 10.1007/s12687-021-00526-3. Epub 2021 Apr 15.
Despite the fact that the internet is a popular source of health information, limited research has been conducted on the ways in which direct-to-consumer (DTC) DNA testing has been discussed by consumers on the internet, and on social media platforms specifically. The purpose of this study was to describe the content of 100 videos that addressed DTC DNA testing on TikTok, a video-sharing social network. The 100 videos included had a combined 77,498 comments and 9,680,309 likes.The majority (> 50%) of videos reviewed mentioned using DTC DNA testing kits to find family roots (94%), included information on commercial DNA testing kits (67%), and featured a person taking or talking about taking a DNA test (92%). These videos also received a majority of the total comments/likes. Neither the use of music (p = .06 and p = .07) nor the mention of using DNA testing to locate family (p = .08 and p = .09) had a significant effect on a video's comments or likes, respectively. Genetic counselors, health care providers, and public health professionals should be aware that there is a need to present both benefits and disadvantages of DTC DNA testing on social media platforms. A greater presence of comprehensive information on social media platforms can increase the likelihood that one makes erudite decisions.
尽管互联网是健康信息的一个流行来源，但针对消费者在互联网上，特别是在社交媒体平台上讨论直接面向消费者（DTC）DNA检测的方式所开展的研究有限。本研究的目的是描述在视频分享社交网络TikTok上100个涉及DTC DNA检测的视频内容。所纳入的这100个视频共有77498条评论和9680309个赞。大多数（>50%）被审查的视频提到使用DTC DNA检测试剂盒寻找家族根源（94%），包含商业DNA检测试剂盒的信息（67%），并且有一个人进行或谈论进行DNA检测的内容（92%）。这些视频也获得了总评论数/点赞数的大部分。音乐的使用（p = 0.06和p = 0.07）以及提及使用DNA检测寻找家族成员（p = 0.08和p = 0.09）分别对视频的评论或点赞均无显著影响。遗传咨询师、医疗保健提供者和公共卫生专业人员应意识到有必要在社交媒体平台上呈现DTC DNA检测的利弊。社交媒体平台上更全面的信息呈现可以增加人们做出明智决策的可能性。
