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社交媒体条款与条件及儿童知情同意书:伦理分析

Social Media Terms and Conditions and Informed Consent From Children: Ethical Analysis.

作者信息

Schneble Christophe Olivier, Favaretto Maddalena, Elger Bernice Simonne, Shaw David Martin

机构信息

Institute of Biomedical Ethics, University of Basel, Basel, Switzerland.

出版信息

JMIR Pediatr Parent. 2021 Apr 22;4(2):e22281. doi: 10.2196/22281.

Abstract

BACKGROUND

Terms and conditions define the relationship between social media companies and users. However, these legal agreements are long and written in a complex language. It remains questionable whether users understand the terms and conditions and are aware of the consequences of joining such a network. With children from a young age interacting with social media, companies are acquiring large amounts of data, resulting in longitudinal data sets that most researchers can only dream of. The use of social media by children is highly relevant to their mental and physical health for 2 reasons: their health can be adversely affected by social media and their data can be used to conduct health research.

OBJECTIVE

The aim of this paper is to offer an ethical analysis of how the most common social media apps and services inform users and obtain their consent regarding privacy and other issues and to discuss how lessons from research ethics can lead to trusted partnerships between users and social media companies. Our paper focuses on children, who represent a sensitive group among users of social media platforms.

METHODS

A thematic analysis of the terms and conditions of the 20 most popular social media platforms and the 2 predominant mobile phone ecosystems (Android and iOS) was conducted. The results of this analysis served as the basis for scoring these platforms.

RESULTS

The analysis showed that most platforms comply with the age requirements issued by legislators. However, the consent process during sign-up was not taken seriously. Terms and conditions are often too long and difficult to understand, especially for younger users. The same applies to age verification, which is not realized proactively but instead relies on other users who report underaged users.

CONCLUSIONS

This study reveals that social media networks are still lacking in many respects regarding the adequate protection of children. Consent procedures are flawed because they are too complex, and in some cases, children can create social media accounts without sufficient age verification or parental oversight. Adopting measures based on key ethical principles will safeguard the health and well-being of children. This could mean standardizing the registration process in accordance with modern research ethics procedures: give users the key facts that they need in a format that can be read easily and quickly, rather than forcing them to wade through chapters of legal language that they cannot understand. Improving these processes would help safeguard the mental health of children and other social media users.

摘要

背景

条款与条件界定了社交媒体公司与用户之间的关系。然而,这些法律协议篇幅冗长且语言复杂。用户是否理解这些条款与条件并知晓加入此类网络的后果仍存疑问。随着儿童自幼便开始使用社交媒体,公司正在获取大量数据,从而形成了大多数研究人员梦寐以求的纵向数据集。儿童使用社交媒体与其身心健康高度相关,原因有二:社交媒体可能对其健康产生不利影响,且其数据可用于开展健康研究。

目的

本文旨在对最常见的社交媒体应用程序和服务如何就隐私及其他问题告知用户并征得其同意进行伦理分析,并探讨研究伦理的经验教训如何促成用户与社交媒体公司之间值得信赖的伙伴关系。我们的论文聚焦于儿童,他们是社交媒体平台用户中的一个敏感群体。

方法

对20个最受欢迎的社交媒体平台以及2个主要的移动电话生态系统(安卓和iOS)的条款与条件进行了主题分析。该分析结果作为对这些平台评分的依据。

结果

分析表明,大多数平台符合立法者发布的年龄要求。然而,注册过程中的同意程序未得到认真对待。条款与条件往往过长且难以理解,尤其是对年轻用户而言。年龄验证情况亦是如此,并非主动进行,而是依赖其他用户举报未成年用户。

结论

本研究表明,社交媒体网络在充分保护儿童方面仍存在诸多不足。同意程序存在缺陷,因为过于复杂,而且在某些情况下,儿童可以在没有充分年龄验证或家长监督的情况下创建社交媒体账户。基于关键伦理原则采取措施将保障儿童的健康和福祉。这可能意味着按照现代研究伦理程序规范注册流程:以易于快速阅读的格式向用户提供他们所需的关键信息,而不是迫使他们艰难地阅读他们无法理解的冗长法律条文。改进这些流程将有助于保障儿童及其他社交媒体用户的心理健康。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1228/8103294/a2f71eb920cd/pediatrics_v4i2e22281_fig1.jpg

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