La Trobe University, Australia.
Autism. 2021 Aug;25(6):1784-1796. doi: 10.1177/13623613211010006. Epub 2021 Apr 25.
We know that parents of autistic children experience poorer mental health and lower well-being than parents of non-autistic children. We also know that poorer mental health among parents of autistic children has been observed across different cultures. Most research focuses on Western cultures, so we know little about parental mental health and well-being of parents from different cultural backgrounds; yet, it is likely that cultural background contributes to how parents view their child's condition and respond to the diagnosis. Here, we compared mental health, quality of life and well-being between families raising an autistic child from Australian backgrounds to families from South-East Asian backgrounds. All children in the current study were receiving the same community-based early intervention. When compared to the general population, parents had poorer mental health overall, but there were no differences between the two groups of parents. However, parents from South-East Asian backgrounds reported higher well-being and fewer difficulties associated with their child's autism. These findings suggest that cultural background likely influences not only parent's view of, and response to, their child's autism, but also their own sense of well-being. As researchers and clinicians working with families of autistic children, we should more explicitly consider family's cultural background within our work.
我们知道,自闭症儿童的父母比非自闭症儿童的父母心理健康状况更差,幸福感更低。我们还知道,在不同的文化中,自闭症儿童的父母心理健康状况更差。大多数研究都集中在西方文化,因此我们对来自不同文化背景的父母的心理健康和幸福感知之甚少;然而,文化背景很可能影响父母如何看待孩子的状况并对诊断做出反应。在这里,我们比较了来自澳大利亚背景的家庭和来自东南亚背景的家庭养育自闭症儿童的心理健康、生活质量和幸福感。目前研究中的所有儿童都接受了相同的基于社区的早期干预。与一般人群相比,父母的整体心理健康状况较差,但两组父母之间没有差异。然而,来自东南亚背景的父母报告说,他们的幸福感更高,与孩子的自闭症相关的困难更少。这些发现表明,文化背景不仅可能影响父母对孩子自闭症的看法和反应,还可能影响他们自己的幸福感。作为与自闭症儿童家庭合作的研究人员和临床医生,我们在工作中应该更明确地考虑家庭的文化背景。