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本文引用的文献

1
Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia.比较在澳大利亚接受早期干预的澳大利亚和东南亚自闭症儿童的父母的心理健康、幸福感和育儿胜任感。
Autism. 2021 Aug;25(6):1784-1796. doi: 10.1177/13623613211010006. Epub 2021 Apr 25.
2
Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder.跨文化视角下家庭生活质量的意义:比较韩国移民家庭和加拿大自闭症谱系障碍儿童的家庭。
Autism. 2021 Jul;25(5):1335-1348. doi: 10.1177/1362361321989221. Epub 2021 Jan 22.
3
Beneficiaries of Rehabilitation.康复的受益者。
Arch Phys Med Rehabil. 2021 Mar;102(3):543-548. doi: 10.1016/j.apmr.2020.09.392. Epub 2020 Oct 22.
4
Children With Special Needs: Social Determinants of Health and Care Coordination.特殊需求儿童:健康的社会决定因素与照护协调。
Clin Pediatr (Phila). 2020 Nov;59(13):1161-1168. doi: 10.1177/0009922820941206. Epub 2020 Jul 16.
5
Resilience in Familial Caregivers of Children with Developmental Disabilities: A Meta-analysis.发展障碍儿童家庭照顾者韧性:元分析。
J Autism Dev Disord. 2020 Nov;50(11):4053-4068. doi: 10.1007/s10803-020-04473-9.
6
A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability.应对策略与慢性病和/或残疾儿童照顾者生活质量之间关系的系统评价。
BMC Pediatr. 2019 Jul 1;19(1):215. doi: 10.1186/s12887-019-1587-3.
7
How do peers promote social inclusion of children with disabilities?A mixed-methods systematic review.同伴如何促进残疾儿童的社会包容?一项混合方法的系统评价。
Disabil Rehabil. 2020 Sep;42(18):2553-2579. doi: 10.1080/09638288.2018.1561955. Epub 2019 Mar 24.
8
Inclusive early childhood development (IECD): A twin-tracking approach to advancing behavioral health and social justice.全纳式儿童早期发展(IECD):促进行为健康和社会正义的双重轨道方法。
Am J Orthopsychiatry. 2019;89(4):442-448. doi: 10.1037/ort0000351. Epub 2018 Jul 26.
9
A glossary of policy frameworks: the many forms of 'universalism' and policy 'targeting'.政策框架术语表:“普遍主义”的多种形式与政策“靶向”
J Epidemiol Community Health. 2017 Mar;71(3):303-307. doi: 10.1136/jech-2014-204311. Epub 2014 Oct 7.
10
Impact, meaning and need for help and support: The experience of parents caring for children with disabilities, life-limiting/life-threatening illness or technology dependence.影响、意义及对帮助与支持的需求:照顾残疾儿童、患有危及生命/生命受限疾病或依赖技术的儿童的父母的经历。
J Child Health Care. 2013 Mar;17(1):92-108. doi: 10.1177/1367493512447089. Epub 2012 Dec 5.

残疾儿童及其家庭的社会服务范围与性质:一项描述性研究。

Range and Nature of Social Services for Children With Disabilities and Their Families: A Descriptive Study.

作者信息

Jeon Hyejin, Shin Hyunsook, Rim Dahae, Shon Soonyoung

机构信息

College of Nursing Science, Kyung Hee University, Seoul, Republic of Korea.

College of Nursing, Keimyung University, Daegu, Republic of Korea.

出版信息

Public Health Nurs. 2025 Jan-Feb;42(1):246-264. doi: 10.1111/phn.13454. Epub 2024 Oct 24.

DOI:10.1111/phn.13454
PMID:39444347
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11700929/
Abstract

OBJECTIVE

Children with disabilities and their families continue to face challenges in social inclusion and accessing resources. This study aimed to evaluate the availability and associated challenges of using services for these children and their families.

METHODS

A descriptive study was conducted to analyze social services for children with disabilities. Data were collected from the official websites of both public and private institutions across three regions in South Korea. These data included information on the service contents and the characteristics of the target beneficiaries.

RESULTS

A total of 12,841 service units were analyzed and grouped into 10 domains and 35 categories of social services. The most frequently identified service content was "Healthcare," followed by "Child and family care" and "Community services." The most frequently used characteristic of target beneficiaries was "Residential area," followed by "Income level," "Benefit," and "Type of disability."

CONCLUSION

The current services are limited in meeting the needs of children with disabilities, particularly in terms of selection criteria, service content, and the integration of policies and delivery systems, contributing to a lack of social inclusion and lower quality of life. Constructing a national scheme to expand eligibility and support tailored to individual circumstances and needs is necessary.

摘要

目的

残疾儿童及其家庭在社会融入和获取资源方面继续面临挑战。本研究旨在评估为这些儿童及其家庭提供服务的可用性及相关挑战。

方法

开展一项描述性研究以分析针对残疾儿童的社会服务。数据收集自韩国三个地区公立和私立机构的官方网站。这些数据包括服务内容信息以及目标受益人的特征。

结果

共分析了12841个服务单元,并将其分为10个领域和35类社会服务。最常提及的服务内容是“医疗保健”,其次是“儿童及家庭照料”和“社区服务”。目标受益人最常被提及的特征是“居住地区”,其次是“收入水平”“福利”和“残疾类型”。

结论

当前的服务在满足残疾儿童需求方面存在局限,尤其是在选择标准、服务内容以及政策与服务提供系统的整合方面,这导致社会融入不足和生活质量较低。有必要构建一个全国性计划,以扩大资格范围并根据个人情况和需求提供量身定制的支持。