van der Meer Lisette, Jonker Tessa, Wadman Heleen, Wunderink Charlotte, van Weeghel Jaap, Pijnenborg Gerdina Hendrika Maria, van Setten Ellie R H
Department of Rehabilitation, Lentis Center for Mental Health Care, Zuidlaren, Netherlands.
Department of Clinical and Developmental Neuropsychology, University of Groningen, Groningen, Netherlands.
Front Psychiatry. 2021 Apr 8;12:635514. doi: 10.3389/fpsyt.2021.635514. eCollection 2021.
Long-term admissions in psychiatric facilities often result in a gradual erosion of the identity of people diagnosed with severe mental illnesses (SMIs) into merely "patient." Moreover, experiences of loss often reduced people's sense of purpose. Although regaining a multidimensional identity and a sense of purpose are essential for personal recovery, few interventions specifically address this, while at the same time take people's often considerable cognitive and communicative disabilities into consideration. This study describes the development process of a new intervention through user-centered design (UCD). UCD is an iterative process in which a product (in this case, an intervention) is developed in close cooperation with future users, such that the final product matches their needs. The design process included three phases: an analysis, design, and evaluation phase. In the analysis phase, the "problem" was defined, users' needs were identified, and design criteria were established. In the design phase, the collected information served as input to create a testable prototype using a process of design and redesign, in close collaboration with service users and other stakeholders. This resulted in an intervention entitled "This is Me" (TiM) in which service users, together with a self-chosen teammate, actively engage in new experiences on which they are prompted to reflect. Finally, in the evaluation phase, TiM was implemented and evaluated in a real-life setting. In a small feasibility pilot, we found indications that some people indeed demonstrated increased reflection on their identity during the intervention. Furthermore, TiM seemed to benefit the relationship between the service users and the mental health professionals with whom they underwent the experiences. The pilot also revealed some aspects of the (implementation of) TiM that can be improved. Overall, we conclude that UCD is a useful method for the development of a new psychosocial intervention. The method additionally increased our knowledge about necessary factors in targeting personal recovery for people with complex mental health needs. Moreover, we conclude that TiM is a promising tool for supporting people with SMI in redeveloping a multidimensional identity and a renewed sense of purpose.
长期入住精神病院往往会导致被诊断患有严重精神疾病(SMI)的人的身份逐渐被侵蚀,沦为仅仅是“患者”。此外,丧失的经历常常会降低人们的目标感。尽管重新获得多维度的身份和目标感对个人康复至关重要,但很少有干预措施专门针对这一点,同时还考虑到人们通常存在的相当严重的认知和沟通障碍。本研究描述了一种通过以用户为中心的设计(UCD)开发新干预措施的过程。UCD是一个迭代过程,在此过程中,一种产品(在本案例中为一种干预措施)与未来用户密切合作开发,以使最终产品符合他们的需求。设计过程包括三个阶段:分析、设计和评估阶段。在分析阶段,定义“问题”,确定用户需求,并确立设计标准。在设计阶段,收集到的信息作为输入,通过与服务用户及其他利益相关者密切合作进行设计和重新设计的过程,创建一个可测试的原型。这产生了一种名为“这就是我”(TiM)的干预措施,在其中服务用户与自行选择的队友一起积极参与新的体验,并被促使对此进行反思。最后,在评估阶段,TiM在现实环境中实施并进行评估。在一个小型可行性试点中,我们发现有迹象表明,一些人在干预过程中确实对自己的身份有了更多反思。此外,TiM似乎对服务用户与他们一起经历这些体验的心理健康专业人员之间的关系有益。该试点还揭示了TiM(的实施)可以改进的一些方面。总体而言,我们得出结论,UCD是开发一种新的社会心理干预措施的有用方法。该方法还增加了我们对针对有复杂心理健康需求的人实现个人康复的必要因素的了解。此外,我们得出结论,TiM是支持患有SMI的人重新建立多维度身份和新的目标感的一种有前景的工具。