Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Antoni Van Leeuwenhoek Hospital, Plesmanlaan 121, 1066 CX, Amsterdam, The Netherlands.
Department of General Practice, Utrecht University, Utrecht, The Netherlands.
Support Care Cancer. 2021 Nov;29(11):6449-6457. doi: 10.1007/s00520-021-06222-9. Epub 2021 Apr 26.
To understand the role of routine follow-up visits in addressing prostate cancer survivors' supportive care and information needs.
We audio-recorded follow-up visits of 32 prostate cancer survivors. Follow-up visits were analyzed according to the Verona Network of Sequence Analysis. We categorized survivors' cues, concerns, and questions into five supportive care domains and divided the responses by the healthcare professionals into providing versus reducing space that is to determine whether or not the response invites the patient to talk more about the expressed cue or concern.
Prostate cancer survivors mostly expressed cues, concerns, and questions (in the health system and information domain) about test results, potential impotence treatment, follow-up appointments, and (their) cancer treatment during follow-up visits. Survivors also expressed urinary complaints (physical and daily living domain) and worry about the recurrence of prostate cancer (psychological domain). Healthcare professionals were two times more likely to provide space on cues and concerns related to the physical and daily living domain than to psychological related issues.
Follow-up visits can serve to address prostate cancer survivors' supportive care and information needs, especially on the health system, information, and physical and daily living domain. Survivors also expressed problems in the psychological domain, although healthcare professionals scarcely provided space to these issues. We would like to encourage clinicians to use these results to personalize follow-up care. Also, these data can be used to develop tailored (eHealth) interventions to address supportive care and information needs and to develop new models of survivorship care delivery.
了解常规随访在满足前列腺癌幸存者的支持性护理和信息需求方面的作用。
我们对 32 名前列腺癌幸存者的随访进行了录音。根据维罗纳网络序列分析对随访进行了分析。我们将幸存者的线索、关注和问题分为五个支持性护理领域，并根据医疗保健专业人员的回答将其分为提供空间和减少空间，以确定回答是否邀请患者更多地讨论表达的线索或关注点。
前列腺癌幸存者在随访期间主要表达了与测试结果、潜在的阳痿治疗、随访预约以及（他们）癌症治疗相关的线索、关注和问题（在健康系统和信息领域）。幸存者还表达了与尿有关的投诉（身体和日常生活领域）以及对前列腺癌复发的担忧（心理领域）。医疗保健专业人员在与身体和日常生活相关的线索和关注点上提供空间的可能性是与心理相关问题的两倍。
随访可以满足前列腺癌幸存者的支持性护理和信息需求，特别是在健康系统、信息和身体及日常生活领域。尽管医疗保健专业人员很少为这些问题提供空间，但幸存者也表达了心理问题。我们希望鼓励临床医生利用这些结果来个性化随访护理。此外，这些数据可用于开发定制的（电子健康）干预措施，以满足支持性护理和信息需求，并开发新的生存护理交付模式。
